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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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The fear of losing another baby after two miscarriages affected their discussion of their nuchal scan results.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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Ringing the Antenatal Results and Choices support group helped her think through her nuchal scan results and decide not to have further tests.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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At first she did not understand what anencephaly meant and spent the night searching books for information.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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The consultant was shocked to discover they had not understood their baby's condition and had to find information themselves.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN45
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The hospital advised against meeting parents of babies with Down's syndrome. She did not get in touch with support groups.
Their son was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment: A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD14.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN41
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They were given useful information about the condition and about termination, but it was difficult to have to read about termination.
Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle & small pulmonary artery. Treatment: Modified BT Shunt & Atrial Septostomy at 24 hrs old. Cardiac catheters & further operations planned when their child is older. Current Medication: diuretics, aspirin, sytron, anti-reflux and lactulose. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD03.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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Before deciding to continue with the pregnancy, she made herself think through all her options, none of which seemed bearable.
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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The rest of pregnancy was focused on the baby's survival. She felt she could not take part in normal pregnancy experiences, including antenatal classe
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN07
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Joining local NCT antenatal classes was generally a positive experience, although occasionally the information did not apply to her.
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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She found out about Antenatal Results and Choices support group after she came out of hospital. She would have liked to have their booklet earlier.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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She still feels screening is valuable, but thinks that the way it is presented to women is too reassuring
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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It helped to meet other parents of children with heart problems in hospital. Their shared experience brought them together.
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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Meeting the oldest surviving child with hypoplastic left heart helped her imagine a future for her son. She felt she had been unprepared for how tough
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Discovering her daughter had Down's syndrome meant she had to change career plans. Caring for her is hard work, but some of the problems are created b
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
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