Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions

Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results

Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis

Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back

Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies

When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening

Living with disabilities or a chronic condition :
Living with a child with a long term condition

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Antenatal Screening

Subject index

Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).

Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN35 >> There is much stigma and social disapproval around termination. They want people to understand what a hard decision it was.

Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.

Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN12 >> Discovering her daughter had Down's syndrome meant she had to change career plans. Caring for her is hard work, but some of the problems are created b

Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.

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