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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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She decided not to have the triple test in her first pregnancy because she thought she was too young to be at risk of Down's syndrome.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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The lack of communication in the 20-week scan in her first pregnancy and having to have a repeat scan made her anxious.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
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Interview AN18
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She relied only on scans in her next pregnancy, and felt the triple test might make her anxious unnecessarily.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN18
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When they were told in their first pregnancy that the baby had severe spina bifida, they felt ending the pregnancy was the best option, because they d
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN01
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They had not fully appreciated what the 20-week scan was looking for.
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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When they arrived for the termination no-one knew they were coming. They had a long wait to see the consultant.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN18
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She was given conflicting advice about whether she could dress the baby after a termination at 20 weeks, which upset her.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN18
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She did not receive the hospital leaflet explaining that she would have some bleeding and her milk would come in.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN18
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She would definitely want screening again, but will always feel anxious in subsequent pregnancies that something could go wrong.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN16
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She refused the triple test in her first pregnancy because she did not realise it was for spina bifida as well as Down's syndrome.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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She and her husband had different views about how they would cope with a child with physical or learning disabilities.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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She was informed about the triple test, but surprised the midwife would visit her if the results showed an increased chance that something was wrong.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
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