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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN20
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She found out at a scan that her first pregnancy was a blighted ovum (the baby had not survived).
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans have been reassuring.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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She would want to be prepared for having a baby with Down's syndrome, having seen a friend's experiences.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN11
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Her doctor in America advised her it was useful preparation to find out before birth if the baby had any problems.
Normal first pregnancy; screening carried out in US, before return to UK when 6 months pregnant. Declined amniocentesis (offered as standard). Compares US and UK.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN14
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It is helpful preparation to find out in advance if the baby has problems.
Seven and a half months pregnant with twins conceived by IVF. Has had scans throughout pregnancy; nuchal translucency scan had to be repeated because of the babies' position.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN20
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Finding at her first 12-week scan that the baby had died was a terrible shock. Her husband was not present, because they had not expected anything to
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans have been reassuring.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN29
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Her history of miscarriage means scans are essential but always worrying. Giving bad news must be hard for staff.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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The lack of communication in the 20-week scan in her first pregnancy and having to have a repeat scan made her anxious.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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Insensitive communication in her 20-week scan made her panic. She could not believe her baby had so many problems.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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She needed to know whether her baby had Down's syndrome, but felt a bit pressurised into having CVS (Chorionic Villus Sampling) immediately.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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The midwife rang her at home with the CVS (Chorionic Villus Sampling) results to tell her the baby had Down's syndrome, but she was at work. The midwi
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN40
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The midwife came in person with her amniocentesis results. She was stunned to hear the baby had Down's syndrome.
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN39
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She had a fetal heart scan straight after the 20-week scan in her fourth pregnancy, and staff explained her baby's heart condition very clearly.
Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN29
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She had a routine fetal heart scan because she was diabetic, and was shocked to discover the baby had a heart condition.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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She knew something was wrong as soon as she saw the baby after birth. The baby went straight to special care.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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They were told the baby had severe brain damage. It was hard to come to terms with the shock.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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It was terrifying to be referred to a specialist hospital as an emergency, but also a relief to have a clear diagnosis of their baby's heart problems.
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
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