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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN07
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She expected CVS (Chorionic Villus Sampling) to hurt, but found it more like mild period pain. It was over very quickly.
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN24
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Amniocentesis did not hurt much but the sensation made her jump at one point.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN39
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It helped to try to relax during the amniocentesis in her most recent pregnancy, and it did not hurt.
Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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She found the CVS (Chorionic Villus Sampling) quick but very painful, and her husband found it very difficult to watch.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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CVS (Chorionic Villus Sampling) was very painful, but it helped that the professor doing it was kind and comforting.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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CVS (Chorionic Villus Sampling) was much more painful than they expected, but it was worth it to have a definite diagnosis.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN07
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After a difficult labour, during which the baby's heart stopped, staff eventually agreed to do a caesarean.
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN29
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In her next pregnancy she had screening again. She would not want to see another baby suffer like her son.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN40
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The termination was more painful than she expected and it was frightening not knowing what to expect.
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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The nurses and one of the doctors were very supportive during the termination, but other staff were sometimes less sympathetic.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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The hospital had a special room for people experiencing a termination. The midwives were very supportive to both parents.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
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