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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN15
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At a scan at 8 months she learned that her baby's brain was partially formed and the prognosis was poor, but the baby has since made better progress t
Following two miscarriages, during next pregnancy had frequent scans. A scan at 8 months unexpectedly found hydrocephalus and brain problems. Termination offered but rejected.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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At first she did not understand what anencephaly meant and spent the night searching books for information.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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The consultant was shocked to discover they had not understood their baby's condition and had to find information themselves.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN17
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She felt too much information about the process of termination might have deterred her from having one. She wanted information and guidance in stages.
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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She never thought she would consider termination, but discovering anencephaly meant the baby could not feel anything changed her mind.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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Her views about screening have changed. She has heard that the baby's anencephaly in her first pregnancy could have been detected earlier, at 12 weeks
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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She was referred to a prenatal diagnosis clinic because of anxiety about a family history of stillbirth and hydrocephalus. A scan at 13 weeks was reas
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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Communication became difficult and hostile during the 12-week scan in her second pregnancy. They discovered the baby had died.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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She refused the triple test in her first pregnancy because she did not realise it was for spina bifida as well as Down's syndrome.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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She did not want to know if her baby had Down's syndrome but wanted to know about neural tube problems because of her family history.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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When they were told in their first pregnancy that the baby had severe spina bifida, they felt ending the pregnancy was the best option, because they d
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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Her baby's hydrocephalus was not detected in pregnancy, but at a scan at 38 weeks she thought the baby looked strange.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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If she had known how bad her daughter's brain damage was expected to be, she might have considered termination, in fact she has made good progress. Sh
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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She felt both guilty that she must have done something wrong to cause the hydrocephalus and angry that it was not detected sooner.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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As not all problems can be detected at the 20-week scan, she felt more screening should be offered in later pregnancy.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
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