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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
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Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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Her baby's hydrocephalus was not detected in pregnancy, but at a scan at 38 weeks she thought the baby looked strange.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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She knew something was wrong as soon as she saw the baby after birth. The baby went straight to special care.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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They were told the baby had severe brain damage. It was hard to come to terms with the shock.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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If she had known how bad her daughter's brain damage was expected to be, she might have considered termination, in fact she has made good progress. Sh
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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She felt both guilty that she must have done something wrong to cause the hydrocephalus and angry that it was not detected sooner.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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As not all problems can be detected at the 20-week scan, she felt more screening should be offered in later pregnancy.
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN10
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Although it was a shock to find her baby had hydrocephalus, she now feels her daughter has been a very positive influence on her life and given her ne
Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Their daughter's Down's syndrome was not formally diagnosed for two weeks after birth, but the mother had already wondered about it.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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The delay in diagnosis and having a home delivery meant they got to know their daughter as a person first and had time to adjust gradually.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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She felt screening was pointless as it could not give a definite diagnosis. She was concerned about pressure to have perfect babies.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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The mother thought something was wrong with her baby after birth, but everyone reassured her till the baby developed pneumonia when she was several we
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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It was terrifying to be referred to a specialist hospital as an emergency, but also a relief to have a clear diagnosis of their baby's heart problems.
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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They were readmitted to hospital two weeks later and felt helpless watching their baby struggle for life. (She has since been operated on successfully
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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One doctor at the specialist hospital told them their daughter's heart condition should have been detected at the 20-week scan.
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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They would like to have their scan pictures reviewed by a specialist to know whether their daughter's heart condition could have been detected before
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
>>
Baby's condition detected after birth
>>
Interview AN03
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They were glad they did not know the diagnosis before birth, as it would have made them worry throughout pregnancy and perhaps created pressure to hav
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN46
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She was glad she did not know about her daughter's heart problem before birth, but in her second pregnancy she did want to know if there was a problem
Their daughter was diagnosed with pulmonary atresia, VSD & an overiding aorta. Treatment: closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2½ yrs old. Current medication: none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD30.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She felt well advised by healthcare staff about the purpose and consequences of screening.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
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