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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
>>
Antenatal Screening
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Normal results or declining screening
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Interview AN01
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Having a friend who had recently had problems in pregnancy made her worried about screening.
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She felt well advised by healthcare staff about the purpose and consequences of screening.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN08
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She and her husband enjoyed the scan, and it made the pregnancy seem real, for him especially.
Normal first pregnancy, routine screening experiences. Private care throughout pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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She knew scans were not just for parents to see their baby, and felt doctors had a responsibility to explain the purpose.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN22
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The person doing her 20-week scan said it was a waste of money if people would not consider termination.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN05
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Her pregnancy pack included a sample container for cystic fibrosis screening, but did not explain what it was for.
4 months pregnant. Normal screening results. One scan in early pregnancy, no other scans planned. Alphafetoprotein results not yet received.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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It would be sensible for sonographers at the 20-week scan to check the woman is properly informed and explain how they will communicate.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN30
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When they went for the nuchal scan, the sonographer asked why they would want to know about abnormalities if they would not consider a termination.
Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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Her midwife's discussion of screening and possible consequences was excellent.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN05
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Even though her background meant she was well informed about healthcare, she would have liked more face-to-face discussion of screening.
4 months pregnant. Normal screening results. One scan in early pregnancy, no other scans planned. Alphafetoprotein results not yet received.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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The written information was better in her current pregnancy than her first and the midwife discussed it carefully with her.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN23
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Written information from her midwife was helpful, but she still had unanswered questions.
After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN40
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The termination was more painful than she expected and it was frightening not knowing what to expect.
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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Written information can seem overwhelming, but people can understand the difference between screening and diagnosis if it is explained clearly.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN14
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It was not always clear what different blood tests were for, but it matters less if the results are normal.
Seven and a half months pregnant with twins conceived by IVF. Has had scans throughout pregnancy; nuchal translucency scan had to be repeated because of the babies' position.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN11
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She felt professionals she met in the UK gave more time to explain and listen than some staff she met in the US.
Normal first pregnancy; screening carried out in US, before return to UK when 6 months pregnant. Declined amniocentesis (offered as standard). Compares US and UK.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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Staff had informed her clearly about screening options but she knew other women who had been less well informed.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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It is time-consuming for health professionals to inform people fully, especially about all the conditions being screened for.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN27
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For first-time mothers it is difficult to know what questions to ask and what information you need.
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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They were impressed by the professionalism of staff carrying out their nuchal scan and felt well informed and reassured.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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Seeing her baby during the nuchal scan was wonderful but it was alarming that staff talked to each other, not to her.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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In her second pregnancy, she was anxious that the sonographer doing the nuchal scan seemed rushed. She needed more reassurance.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN14
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In two repeat nuchal scans, she felt the consultant was much more communicative than the first person who scanned her.
Seven and a half months pregnant with twins conceived by IVF. Has had scans throughout pregnancy; nuchal translucency scan had to be repeated because of the babies' position.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN21
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The sonographer was quiet during her nuchal scan. She would rather wait till after the scan to receive bad news.
Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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She felt it was important for health staff to imagine themselves in the patient's place and remember to show human warmth.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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She grew anxious when the sonographer became silent during the nuchal scan, and was upset that the sonographer could not discuss the results.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN06
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He felt the local hospital needed to be better prepared to discuss the results of the nuchal scan with them.
Third pregnancy, after two miscarriages. Nuchal scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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She would have liked her husband to be allowed in with her throughout the nuchal scan in her first pregnancy. They gradually realised something was wr
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN17
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She thought her baby's hydrocephalus may have been suspected at the nuchal scan in her first pregnancy but she was not told.
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN05
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The 12-week scan helped check for twins and was a moving experience. The sonographer explained everything.
4 months pregnant. Normal screening results. One scan in early pregnancy, no other scans planned. Alphafetoprotein results not yet received.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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The 12-week scan was a wonderful experience for them, but the staff seemed to treat it as very routine.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN20
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Finding at her first 12-week scan that the baby had died was a terrible shock. Her husband was not present, because they had not expected anything to
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans have been reassuring.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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She knew at once something was wrong at her first 12-week scan, when it was discovered the baby had died. It would have helped to know more about misc
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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Her 12-week dating scan had to be repeated twice, and she was told the baby's nuchal fold was swollen.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN29
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Her history of miscarriage means scans are essential but always worrying. Giving bad news must be hard for staff.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN29
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In an early heart scan in her current pregnancy the sonographer was friendly and welcoming, and made her husband feel involved.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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Communication became difficult and hostile during the 12-week scan in her second pregnancy. They discovered the baby had died.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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The information about what the 20-week scan was looking for was very thorough.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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The 20-week scan was reassuring but not as exciting as she expected, and the pictures were unclear.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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Her first 20-week scan was professional but brief. The second time she had a specialist midwife who made it a happy experience.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN23
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At her 20-week scan in France she was given detailed information and explanation. She and her husband were very reassured.
After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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Staff seemed uncommunicative on the day of her 20-week scan, and she felt anxious something might have been missed.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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They had an anxious moment at the 20-week scan when the sonographer paused briefly. They felt he communicated honestly.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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When staff spotted something unusual during the 20-week scan, she was very anxious and would have liked more immediate explanation.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
>>
Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN22
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It must be difficult for the person doing the scan to check something they are unsure about if the woman is watching the screen throughout.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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She went for a routine repeat anomaly scan at 24-5 weeks in her second pregnancy, not expecting anything unusual would be found. She was alone with he
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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At the 20-week scan, they valued the sonographer's honesty and kindness. She called the baby 'he', not 'it'.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
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Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN04
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She felt anxious when staff talked to each other and not to her, when they spotted the baby's heart problems at her anomaly scan.
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN22
>>
An increased risk can be difficult to interpret, without knowing about the original baseline risk.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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The lack of communication in the 20-week scan in her first pregnancy and having to have a repeat scan made her anxious.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN39
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Staff have to concentrate while doing scans, but some initial reassurance and a friendlier manner might help.
Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).
Pregnancy & children
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Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN02
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It is understandable that staff have to concentrate during scans, but it makes you anxious when they go quiet.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
At the 20-week scan in her current pregnancy, the sonographer explained she would be silent, but the mother still felt anxious, especially after the e
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
>>
Interview AN17
>>
She was worried in the waiting room between scans, and would rather have been told immediately that they suspected hydrocephalus.
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
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Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN20
>>
She had to wait for a repeat 20-week scan in her current pregnancy when problems with the baby's digestive system were suspected, and she found the wa
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans have been reassuring.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN16
>>
The sonographer explained she would be silent at the 20-week scan in the woman's first pregnancy. She felt staff communicated bad news with honesty an
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
>>
Interview AN36
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At the 20-week scan, the sonographer seemed bored. When he started to find problems she found it hard to grasp.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
>>
Interview AN36
>>
Insensitive communication in her 20-week scan made her panic. She could not believe her baby had so many problems.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN17
>>
She would have liked a scan photo to remember the baby, but was too embarrassed to ask.
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
>>
Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN14
>>
The midwife explaining her scan results got the graph the wrong way round, but checked it with a colleague.
Seven and a half months pregnant with twins conceived by IVF. Has had scans throughout pregnancy; nuchal translucency scan had to be repeated because of the babies' position.
Pregnancy & children
>>
Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN20
>>
She was impressed with the medical care in her current pregnancy, but felt overwhelmed with information. She would have preferred more reassurance tha
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans have been reassuring.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN02
>>
When she first heard her nuchal scan results, she did not interpret 1 in 20 as very high risk.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
>>
Antenatal Screening
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Ending an affected pregnancy
>>
Interview AN31
>>
She needed to know whether her baby had Down's syndrome, but felt a bit pressurised into having CVS (Chorionic Villus Sampling) immediately.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN17
>>
Sometimes healthcare staff assume you will have further tests. When the nuchal scan results in her second pregnancy indicated an increased chance of a
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN30
>>
They decided to have heart scans only and not amniocentesis. Staff pushed them to consider this carefully.
Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN32
>>
She was unhappy with the information given at her first hospital, but things improved when she saw a specialist.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN32
>>
They felt very well looked after at the specialist hospital they were referred to, and her partner felt more involved.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN40
>>
When she went for amniocentesis, the doctor questioned whether it was necessary, but she chose to go ahead.
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
Pregnancy & children
>>
Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN11
>>
Her doctor in America recommended amniocentesis as a routine investigation, but she did not agree.
Normal first pregnancy; screening carried out in US, before return to UK when 6 months pregnant. Declined amniocentesis (offered as standard). Compares US and UK.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN07
>>
She expected CVS (Chorionic Villus Sampling) to hurt, but found it more like mild period pain. It was over very quickly.
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN06
>>
The doctor performing the CVS (Chorionic Villus Sampling) put them at their ease, and his care was a good example for students present.
Third pregnancy, after two miscarriages. Nuchal scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN39
>>
It helped to try to relax during the amniocentesis in her most recent pregnancy, and it did not hurt.
Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN31
>>
CVS (Chorionic Villus Sampling) was very painful, but it helped that the professor doing it was kind and comforting.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN07
>>
She quickly realised in the heart scan that something was wrong with the baby's heart, and the silence was unnerving.
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN38
>>
It was better that the doctor explained the baby's many problems at the end of the scan rather than during it.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN07
>>
She rang to check the CVS (Chorionic Villus Sampling) results, and the receptionist was rude. Next day they were told it was negative for chromosomal
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN02
>>
The midwife rang her at home with the CVS (Chorionic Villus Sampling) results to tell her the baby had Down's syndrome, but she was at work. The midwi
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
They thought the CVS (Chorionic Villus Sampling) results were negative, but then got another phone call to say the baby had Turner's syndrome.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN40
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The midwife came in person with her amniocentesis results. She was stunned to hear the baby had Down's syndrome.
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN39
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She had a fetal heart scan straight after the 20-week scan in her fourth pregnancy, and staff explained her baby's heart condition very clearly.
Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN29
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She had a routine fetal heart scan because she was diabetic, and was shocked to discover the baby had a heart condition.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN15
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At a scan at 8 months she learned that her baby's brain was partially formed and the prognosis was poor, but the baby has since made better progress t
Following two miscarriages, during next pregnancy had frequent scans. A scan at 8 months unexpectedly found hydrocephalus and brain problems. Termination offered but rejected.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN06
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The internet was a valuable source of information, and helped them identify questions to ask about their son's heart condition. Their doctors always r
Third pregnancy, after two miscarriages. Nuchal scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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The consultant was shocked to discover they had not understood their baby's condition and had to find information themselves.
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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She felt the consultant was unsympathetic and wanted her to decide quickly whether to end the pregnancy. He said she could have more children.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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The mother continued to attend a mums and toddlers group, even though it was hard seeing other people with healthy babies.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN06
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They felt lucky their son's heart condition was detected early, and would make the same screening decisions again.
Third pregnancy, after two miscarriages. Nuchal scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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Once they knew the baby had Edwards' syndrome, they felt termination was inevitable, but needed more sympathetic support and counselling.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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Having sympathetic care during the termination was important, including a midwife who cried with her and held her hand.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN17
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She felt staff were unsympathetic during the termination at 23 weeks. Her memories of the baby she wanted and loved were affected by how staff behaved
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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She had a surgical termination at just over 14 weeks. She felt no-one treated her sympathetically or recognised her distress on the day it happened.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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They would have preferred the baby to die before the termination, and at first misunderstood the effect of the mifepristone tablets. Waiting between t
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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The nurses and one of the doctors were very supportive during the termination, but other staff were sometimes less sympathetic.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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The hospital had a special room for people experiencing a termination. The midwives were very supportive to both parents.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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When they arrived for the termination no-one knew they were coming. They had a long wait to see the consultant.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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She was given conflicting advice about whether she could dress the baby after a termination at 20 weeks, which upset her.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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She did not receive the hospital leaflet explaining that she would have some bleeding and her milk would come in.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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The consultant doing the 12-week scan in her current pregnancy recognised her anxiety and reassured her as quickly as possible.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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At the 20-week scan in their current pregnancy, they were given the folder with results from the previous pregnancy by mistake.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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In her current pregnancy she decided to have CVS (Chorionic Villus Sampling). She found it hard to understand how her risk was calculated this time.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Their daughter's Down's syndrome was not formally diagnosed for two weeks after birth, but the mother had already wondered about it.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
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