Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions

Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results

Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis

Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back

Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies

When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening

Living with disabilities or a chronic condition :
Living with a child with a long term condition

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Antenatal Screening

Subject index

Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).

Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN04 >> The rest of pregnancy was focused on the baby's survival. She felt she could not take part in normal pregnancy experiences, including antenatal classe

Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.

Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN07 >> Joining local NCT antenatal classes was generally a positive experience, although occasionally the information did not apply to her.

Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.

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