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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
At the 20-week scan in her current pregnancy, the sonographer explained she would be silent, but the mother still felt anxious, especially after the e
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
She had the combined blood test and nuchal scan in her first pregnancy. It was the blood test results that alerted them to their baby's condition (Tur
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
They thought the CVS (Chorionic Villus Sampling) results were negative, but then got another phone call to say the baby had Turner's syndrome.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
In making their heartbreaking decision to end the pregnancy at 17 weeks, they wanted to do what was best for their daughter and their family.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
They would have preferred the baby to die before the termination, and at first misunderstood the effect of the mifepristone tablets. Waiting between t
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
The father could not face looking at the baby afterwards, but the mother did. The hospital chaplain performed a naming ceremony.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
The father felt more certain than the mother that they had done the right thing. Going back to work helped him recover.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
There is much stigma and social disapproval around termination. They want people to understand what a hard decision it was.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
>>
Antenatal Screening
>>
Ending an affected pregnancy
>>
Interview AN35
>>
At the 20-week scan in their current pregnancy, they were given the folder with results from the previous pregnancy by mistake.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
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