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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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It was better that the doctor explained the baby's many problems at the end of the scan rather than during it.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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They continued the pregnancy because they needed to know in future they had given their baby every chance.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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It was a relief to decide to continue with the pregnancy, but also a time of grief.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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Local healthcare staff offered them support at home, including massage and relaxation. Pregnancy was precious time with their unborn son.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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The mother continued to attend a mums and toddlers group, even though it was hard seeing other people with healthy babies.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN38
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When the baby died shortly after birth, the family spent time together before taking him home. They kept many mementoes.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN38
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Finding out their son had Patau's syndrome meant they could ensure he was treated with dignity when he was born.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN38
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At the 20-week scan, they valued the sonographer's honesty and kindness. She called the baby 'he', not 'it'.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
>>
Antenatal Screening
>>
Continuing with an affected pregnancy
>>
Interview AN38
>>
They needed definite confirmation that the baby had Patau's syndrome, and agreed with medical advice to have amniocentesis.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
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