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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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She and her husband had different views about how they would cope with a child with physical or learning disabilities.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Discovering her daughter had Down's syndrome meant she had to change career plans. Caring for her is hard work, but some of the problems are created b
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Having a child with Down's syndrome has been an enriching experience and has changed their view of what is important in life.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN01
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When she and her husband discussed their feelings about disability after screening, they discovered they had different views.
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Having another baby with Down's syndrome would have major implications for the family, but it would be difficult to contemplate termination. Media ima
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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When people are told their baby will have Down's syndrome, they need more balanced information about life with the condition.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN30
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Having a baby with Down's syndrome has been a positive influence on their lives. The anxieties they faced did not feel very different from any other p
Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN30
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They are optimistic about their son's future because social attitudes towards Down's syndrome are continuing to improve.
Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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Her brother's unexplained severe learning disabilities made her worried about screening and pregnancy.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She was impressed with the genetic counselling and testing she was offered, and found it reassuring.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She was anxious about her mother's feelings about genetic testing because of a family history of learning disabilities.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She felt reassured she had done as much as she could by having screening and genetic testing.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
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