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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN24
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She decided not to have a CVS (Chorionic Villus Sampling) when her nuchal scan results came back low risk, but was still considering amniocentesis.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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She was unhappy with the information given at her first hospital, but things improved when she saw a specialist.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN32
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They felt very well looked after at the specialist hospital they were referred to, and her partner felt more involved.
Problems detected in first pregnancy at routine 12 week dating scan - confirmed as Edward's syndrome by CVS. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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She needed to know whether her baby had Down's syndrome, but felt a bit pressurised into having CVS (Chorionic Villus Sampling) immediately.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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CVS (Chorionic Villus Sampling) was very painful, but it helped that the professor doing it was kind and comforting.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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They were both very upset, and couldn't talk about what they would do until they had the CVS (Chorionic Villus Sampling) results.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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In her next pregnancy, she thought she would want CVS (Chorionic Villus Sampling), but decided against it because her nuchal scan results were low ris
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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They thought the CVS (Chorionic Villus Sampling) results were negative, but then got another phone call to say the baby had Turner's syndrome.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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CVS (Chorionic Villus Sampling) was much more painful than they expected, but it was worth it to have a definite diagnosis.
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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They worried about the risk of miscarriage but decided to have CVS (Chorionic Villus Sampling) in their first pregnancy because their screening result
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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She found the CVS (Chorionic Villus Sampling) quick but very painful, and her husband found it very difficult to watch.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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In her current pregnancy she decided to have CVS (Chorionic Villus Sampling). She found it hard to understand how her risk was calculated this time.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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The midwife rang her at home with the CVS (Chorionic Villus Sampling) results to tell her the baby had Down's syndrome, but she was at work. The midwi
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN06
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The doctor performing the CVS (Chorionic Villus Sampling) put them at their ease, and his care was a good example for students present.
Third pregnancy, after two miscarriages. Nuchal scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN07
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She rang to check the CVS (Chorionic Villus Sampling) results, and the receptionist was rude. Next day they were told it was negative for chromosomal
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN07
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Their nuchal scan results gave them a risk of 1 in 21. They felt they needed certainty, so they had CVS (Chorionic Villus Sampling).
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN07
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She expected CVS (Chorionic Villus Sampling) to hurt, but found it more like mild period pain. It was over very quickly.
Third pregnancy, after two miscarriages. Nuchal translucency scan suggested problems; CVS ruled out Down's syndrome but heart problems identified by further scan. Baby born March 2003, successful surgery completed.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN34
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Having missed the deadline for a combined nuchal scan and blood test she was offered CVS (Chorionic Villus Sampling) but refused.
Routine screening experiences. Healthy baby born 2002.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN21
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Having talked to her GP, she felt there was little point in having screening if you would not consider termination.
Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.
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