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Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 02
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Because of her husband's injuries, sex is no longer such an important part of their relationship and they have grown closer.
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 27
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Although doctors thought her husband wouldn't be able to do much for himself any more, he gradually started recognising people and responding to conve
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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Every day her son improved in some small way and slowly started regaining weight.
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 20
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To help his wife understand that she'd been hallucinating, nurses took her back to visit ICU when she was on a ward.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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Although her mother had good and bad days, she was overjoyed when she saw her sit up, smile and talk again.
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 07
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One of the nurses took her son outside when he was in HDU and having so much more to look at helped him become more alert and aware.
Their son was admitted to ICU in 2005 with bacterial meningitis. It was a traumatic time but he is now back home and has made excellent progress.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 10
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She grew closer to her partner and his illness made them both more aware of what was important to them.
In 2006 her partner was diagnosed with Weil's disease, a rare bacterial infection. She stayed at the hospital for five nights and then in a nearby hotel.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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She wishes she had taken photos so her brother could see how ill he'd been and why it was taking so long to recover.
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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He would have liked photos and a video of his partner's mother's accident because they would help her see how well she is recovering whenever she feel
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 33
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Keeping a diary had been helpful for both her and her husband and she gave it to him when he was strong enough physically and emotionally to take it a
Her husband was admitted to ICU after having emergency surgery. It was particularly difficult looking after other family members as well as visiting her husband.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She and her family made a diary from the emails and text messages they'd received while her sister was ill to help answer her questions when she was r
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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Her sister is now much better, more independent and has spent a lot of time visiting friends before she eases herself back into work.
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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At his follow-up appointment, her husband was shown around the ICU and his questions were answered, which was reassuring because he couldn't remember
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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His partner regained physical strength quite quickly and is back to work but still asks questions about her time in ICU.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 38
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At first she was worried about hurting her partner because of his surgery but, in time, they felt comfortable again about having sex.
In 2005 her husband had a car accident and was admitted to ICU for two weeks. She feels it is important for couples to discuss their feelings with one another and, when they feel ready, to get back to normal, including having sex again.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 36
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His father is a different person now and looks as healthy as he did 18 months ago when he was very well.
His father went to ICU after having a stroke and developing pneumonia. Members of the family supported one another and he is now closer to his sister.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 02
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Shortly after taking her husband home, he received physiotherapy and occupational therapy, and she had two weeks off work to look after him.
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 07
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Although their son had to have some minor surgery and is still making progress, he has made a remarkable recovery considering how ill he'd been.
Their son was admitted to ICU in 2005 with bacterial meningitis. It was a traumatic time but he is now back home and has made excellent progress.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 04
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Her son is now driving again and she is looking forward to the time he will be completely independent, which will be huge progress considering how sev
In October 2004, her son had a motorbike accident and was admitted to ICU. He had a serious head injury and broken jaw.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 05
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He and his daughter looked after his wife when she was discharged from hospital, and she'd needed help with walking, washing and personal care.
In 2003 his wife was involved in an accident in the home. He stayed at the hospital for two weeks while his wife was in the first ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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Her mother has made a good recovery but still has good and bad days.
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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He felt that his partner's mother should have stayed longer in hospital to gain more strength and received more support when she came back home.
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 27
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Her husband improved physically over time but, because his memory is still very poor, she doesn't like to leave him on his own for very long.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 31
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Because of problems with personal care, mobility and eyesight, he cares for his wife full time.
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 32
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After his surgery, her husband is stronger and healthier than he was several years ago and it has changed the quality of their lives.
His husband was admitted to ICU before and after a kidney pancreas transplant. She spent three weeks travelling to the hospital as well as working.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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When her husband first came back home she used to check that he was still breathing while he was asleep and still phones him regularly if he's away to
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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Family members sometimes became very emotional when his partner's mother was having a bad time and he benefited from talking about this with friends.
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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When her son first came home he was often difficult to live with because he'd get angry and aggressive, but talking to his occupational therapist help
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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When her mother was recovering, she sometimes felt angry and forgotten because there was so little support for relatives.
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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His partner's brother hardly ever visits now, even though he and the rest of the family are much closer.
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 31
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Because his wife is very weak, visually impaired and still has serious bowel problems, he looks after her and has become quite housebound.
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 14
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She gave up work to look after her husband full time and encourages him when he feels depressed about the things he can no longer do.
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 20
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He found the practical advice from another couple useful and was later able to pass on advice to others who'd found themselves in a similar situation.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 05
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Talking to other people helped him come to terms with feelings he'd been bottling up for over a year.
In 2003 his wife was involved in an accident in the home. He stayed at the hospital for two weeks while his wife was in the first ICU.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 04
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She wanted to see how her son would progress without outside influences but also wondered if it was too soon for them to think about joining support g
In October 2004, her son had a motorbike accident and was admitted to ICU. He had a serious head injury and broken jaw.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 02
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It would have been helpful at the time to talk to someone from a support group but she found only out about these after her husband's recovery.
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 05
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He felt there was a lack of medical support after ICU and that his wife's recovery depended very much on the care given to her by him, his daughter an
In 2003 his wife was involved in an accident in the home. He stayed at the hospital for two weeks while his wife was in the first ICU.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 31-40
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Interview 29
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His partner's mother should have stayed in hospital longer so she could get the support she needed from people who were medically trained.
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 37
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He felt strongly about there being more support for ICU patients, including ICU follow-up clinics, physiotherapy and psychological support.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 31
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His wife is very dependent now and he feels that no one could understand her needs and problems without spending a lot of time with her first.
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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She felt the medication her husband had been given caused him severe problems and, if she hadn't been there to look after him and seek help, he might
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 31-40
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Interview 15
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Accept support, ask questions if you need information and be aware that when the patient comes home there will be good and bad days.
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 14
>>
Support and encourage the ill person, including when they feel low or frustrated and it feels difficult for you.
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
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