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Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 28
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Her son-in-law was extremely confused when he came round, had a poor memory for quite a while afterwards but did gradually improve.
Her daughter was admitted to a ward and her son-in-law to ICU after they had a car accident. She stayed in their home so she could visit.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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Her partner only realised how long he'd been in hospital when he saw that his baby daughter had started teething.
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 14
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She asked lots of questions and wanted to be kept informed but was surprised when she spoke to other visitors who knew very little about their relativ
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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She wishes she had taken photos so her brother could see how ill he'd been and why it was taking so long to recover.
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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The diary she kept for her partner told him about what happened while he was in ICU, including who had visited him, and the photos showed him the scen
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She and her family made a diary from the emails and text messages they'd received while her sister was ill to help answer her questions when she was r
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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She has a good memory and, even though nurses offered to keep a diary for her and her partner, they decided they didn't really need one.
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 04
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Her son had to have his own room because he had MRSA but she felt he was in danger of injuring himself whenever he tried to walk and that he needed su
In October 2004, her son had a motorbike accident and was admitted to ICU. He had a serious head injury and broken jaw.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 27
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Her husband improved physically over time but, because his memory is still very poor, she doesn't like to leave him on his own for very long.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 27
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Although her husband has made lots of progress, he still can't be left on his own for very long and, sometimes, other relatives help out.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 27
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Although she's never been interested in financial matters, she is now having to take care of everything because her husband wouldn't be able to rememb
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 27
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Her husband is now very forgetful and she has to explain things to him and sometimes feels sad because their relationship has changed.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
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