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Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 32
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She kept a diary for twenty years and wrote especially during times of stress, but her husband hadn't wanted to read about his time in ICU.
His husband was admitted to ICU before and after a kidney pancreas transplant. She spent three weeks travelling to the hospital as well as working.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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She kept notes on her mother's ICU stay and turned them into a diary, which she gave her mother on the second anniversary of her illness.
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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She kept a diary throughout her son's time in ICU apart from of the first day, which was still very vivid in her mind.
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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He kept a diary so he could gain distance from what was happening to his wife and see if there were any patterns emerging when she kept improving and
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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She wishes she had taken photos so her brother could see how ill he'd been and why it was taking so long to recover.
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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The diary she kept for her partner told him about what happened while he was in ICU, including who had visited him, and the photos showed him the scen
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 33
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Keeping a diary had been helpful for both her and her husband and she gave it to him when he was strong enough physically and emotionally to take it a
Her husband was admitted to ICU after having emergency surgery. It was particularly difficult looking after other family members as well as visiting her husband.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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He'd never written letters to his partner before but, when she was in ICU, he felt moved to write them and later gave them to her.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She and her family made a diary from the emails and text messages they'd received while her sister was ill to help answer her questions when she was r
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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She has a good memory and, even though nurses offered to keep a diary for her and her partner, they decided they didn't really need one.
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 26
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Her sister-in-law had left instructions and had wanted a Jewish funeral.
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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She felt the medication her husband had been given caused him severe problems and, if she hadn't been there to look after him and seek help, he might
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 30
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He feels it is important for ICU doctors to keep repeating information, give information that is consistent, and continually update relatives.
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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Throughout her husband's stay in hospital and afterwards, she received conflicting information about whether he'd had MRSA, though she understands why
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Topic
Intensive care
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Intensive care: experiences of family & friends
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Keeping a diary
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Keeping a diary
Keeping a diary
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