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Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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Counselling helped her accept what had happened and start moving forwards with her life again.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 12
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The day after her son died, she saw another patient in the same bed he'd been lying in, fighting for his life.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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With the help of a counsellor, she is moving forwards, developing new interests and being able to think about the future again.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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She felt that visitors were supportive of each other and, because her son was so young, she received enormous support as well.
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She found it upsetting talking to people who'd been bereaved but reassuring to see some people recover and move out of intensive care.
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 04
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She found it extremely traumatic when someone died and difficult to be supportive to others when her own son was also fighting for his life.
In October 2004, her son had a motorbike accident and was admitted to ICU. He had a serious head injury and broken jaw.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 24
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The relatives' room wasn't really big enough and you couldn't make yourself a drink.
Her mother had cardiac arrest. She spent nine days in ICU and now lives with her daughter. She received a lot of support from her family.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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She sat with her husband until he died and, in time, was given information about what she had to do next.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 26
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She would have liked to have known her sister-in-law better when she'd been alive, and learnt that she'd had many friends and interests.
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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Some days during the next few weeks she felt so depressed she didn't want to see anyone or leave the house.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 33
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She and her husband had talked about end of life decisions and her husband had said he wouldn't want to live if he would be left brain damaged.
Her husband was admitted to ICU after having emergency surgery. It was particularly difficult looking after other family members as well as visiting her husband.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 20
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They didn't want their relative to be kept alive if she would be brain damaged because she wouldn't want to live like that.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 30
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It is important for relatives to think about what the patient would want, however hard this may seem at the time.
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 12
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At the time, she just wanted her son to live but now feels this would have been selfish because he wouldn't have wanted to be completely dependent on
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 30
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His 83-year-old father had spent five weeks in ICU and wasn't improving. He and his mother felt it was kinder for doctors to withdraw treatment and pu
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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She didn't want her husband to suffer any more and agreed with the doctor's advice to withdraw his treatment.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 26
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She felt confused with the information she received from different doctors but, when her sister-in-law deteriorated even further, doctors made the dec
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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Her husband, who'd had liver disease, improved slightly at first but was then re-admitted to ICU from HDU and died two days later.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 41-50
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Interview 30
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His 83 year old father developed a succession of complications following surgery for cancer and finally died while still on ICU.
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 09
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She felt doctors used a lot of medical language and didn't explain clearly that their son would be dying that very night, which came as a huge shock.
Her son had lymphoma and bowel perforation and sadly died on a ward. She felt doctors should explain information clearly to relatives, who are usually unfamiliar with medical terms.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 12
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A nurse rang her at three in the morning and told her, once she and her husband were at the hospital, that their son was dying.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 70 +
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Interview 26
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She and her husband saw her sister-in-law after talking with doctors, who withdrew treatment and removed medical equipment before they went in to see
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 12
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It was important for her and her husband to see their son not attached to any equipment, looking peaceful.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 70 +
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Interview 26
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Her sister-in-law had left instructions and had wanted a Jewish funeral.
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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Her husband had told her what kind of a funeral he'd wanted, including the music, and this was something they'd talked about on several occasions.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 12
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Organising their son's funeral helped her husband focus on something. They wanted everyone to dress normally, had lots of flowers and their son's favo
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 12
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She advised people to accept their feelings, not to burden other people with their grief but try to be positive, have a purpose and move on.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 70 +
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Interview 26
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She had to clear out and sell her sister-in-law's flat and contents, which was very difficult at first because it felt cruel to her memory.
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 31-40
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Interview 13
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Although at first she felt angry with God, Spiritualism and Buddhism helped her accept and deal with her husband's death.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 31-40
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Interview 13
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As a young widow she has had to look after her financial affairs and advises others in a similar situation to find out as much as possible so they can
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 12
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She takes every day as it comes, and feels that other people have far greater problems than hers and this helps her keep life in perspective.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
>>
Interview 12
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Certain times of the year are especially difficult, including Christmas, New Year, Mother's Day and Father's Day.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
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