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Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 16
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She and her husband support each other when caring for their son feels difficult.
She cares for her 13-year-old son, who has congenital muscular dystrophy. In 2003 he had a serious chest infection and was admitted to a peadiatric ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 27
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She'd had cancer before and worried about who would look after her husband if she ever became ill again.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 05
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He and his daughter looked after his wife when she was discharged from hospital, and she'd needed help with walking, washing and personal care.
In 2003 his wife was involved in an accident in the home. He stayed at the hospital for two weeks while his wife was in the first ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 18
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Her friend needed a lot of help at first and, five years on, is still weaker than before and gets depressed about the way her life has changed.
Her best friend spent two weeks in ICU. She was the closest person to her, visited her daily and is now her main carer.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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He felt that his partner's mother should have stayed longer in hospital to gain more strength and received more support when she came back home.
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 27
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Her husband improved physically over time but, because his memory is still very poor, she doesn't like to leave him on his own for very long.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 31
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Because of problems with personal care, mobility and eyesight, he cares for his wife full time.
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 16
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A carer helps her son during the week and she cares for him the rest of the time, including giving him some physiotherapy and extra oxygen.
She cares for her 13-year-old son, who has congenital muscular dystrophy. In 2003 he had a serious chest infection and was admitted to a peadiatric ICU.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 27
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Although her husband has made lots of progress, he still can't be left on his own for very long and, sometimes, other relatives help out.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 31
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Because his wife is very weak, visually impaired and still has serious bowel problems, he looks after her and has become quite housebound.
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 14
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She gave up work to look after her husband full time and encourages him when he feels depressed about the things he can no longer do.
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 18
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Her best friend has needed a lot of support and their relationship has changed because she now has to help her with her shopping, hospital appointment
Her best friend spent two weeks in ICU. She was the closest person to her, visited her daily and is now her main carer.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 27
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Although she's never been interested in financial matters, she is now having to take care of everything because her husband wouldn't be able to rememb
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 20
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At first he was worried that he'd become his wife's carer rather than her husband but that didn't become an issue.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 27
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Her husband is now very forgetful and she has to explain things to him and sometimes feels sad because their relationship has changed.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
>>
Intensive care: experiences of family & friends
>>
Aged 61-70
>>
Interview 14
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She gave up work to look after her husband full-time and, because neither she nor her husband are earning, this has had a big impact on them and they
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
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