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Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 32
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She and her husband were really pleased when doctors told them he was eligible for a transplant operation and, before the surgery, they were shown aro
His husband was admitted to ICU before and after a kidney pancreas transplant. She spent three weeks travelling to the hospital as well as working.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 02
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She felt her husband looked like a stranger after his mountain bike accident and dreaded breaking the news to his parents.
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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Although, due to his work, he felt he knew all about intensive care units he was completely unprepared for how he'd feel seeing his own wife there.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 09
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Everything was explained to them so, when they left ICU, they felt their son was in safe hands and would receive all the care he needed.
Her son had lymphoma and bowel perforation and sadly died on a ward. She felt doctors should explain information clearly to relatives, who are usually unfamiliar with medical terms.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 08
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Because a friend had previously been in ICU after a car accident, he knew what to expect when his wife was admitted to intensive care after having eme
His wife was admitted to ICU after having complications during emergency surgery. During her time in hospital he had a lot of support from family and his local community.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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Ask questions, trust the staff and be there for the patient.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 20
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They were given lots of information about surgery and other treatments, and felt the nurses were supportive to them and the patient.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 18
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Her friend's son didn't understand how seriously ill his mother was until afterwards and stayed with his grandparents during that time.
Her best friend spent two weeks in ICU. She was the closest person to her, visited her daily and is now her main carer.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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When her brother had been in ICU for two weeks, she let her two children visit him in case he didn't survive or improve.
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 02
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After seeing her husband straight after he'd been admitted to ICU, she dreaded having to break the news of his accident to his parents.
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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At the beginning there was very little change in her son's condition and sending updates was difficult because people often misinterpreted a slight ch
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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Doctors were happy to answer all his questions and phoned him to explain exactly what was wrong with his wife as soon as they'd found out themselves.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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She never learnt why her husband got so ill so quickly, but felt ICU doctors always gave information and updates about his illness honestly and openly
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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At the time her son was ill she didn't know he was being kept alive by machines.
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 04
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She was extremely disappointed in two doctors who wouldn't believe her when she said her son had shown signs of awareness, and felt it was too soon to
In October 2004, her son had a motorbike accident and was admitted to ICU. He had a serious head injury and broken jaw.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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Before she saw her husband in ICU for the first time, nurses explained everything to her about the equipment he'd been attached to.
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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The nurses explained everything about the treatments, answered all her questions and supported her through an extremely difficult time.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She and other members of her family helped clean her sister's mouth and with other aspects of care whenever they visited her.
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 30
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Both he and his mother noticed that some nurses were more diligent at cleaning and preventing the spread of infection than others.
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 12
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A nurse rang her at three in the morning and told her, once she and her husband were at the hospital, that their son was dying.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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At his follow-up appointment, her husband was shown around the ICU and his questions were answered, which was reassuring because he couldn't remember
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 07
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Get as much information as you can, ask questions if there is anything you don't understand, and never give up hope or being positive.
Their son was admitted to ICU in 2005 with bacterial meningitis. It was a traumatic time but he is now back home and has made excellent progress.
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