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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
>>
HIV
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Aged 41-45
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Interview 10
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His male partner was deported and he felt it was difficult for others to understand his grief.
Today, he has considerable support from friends and family, and takes a combination of anti-retroviral drugs with few side effects (abacavir, 3TC, Kaletra). He is now in good health except for occasional chest infections.
Chronic health issues
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HIV
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Aged 46-55
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Interview 04
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What it was like to end a relationship and go through a 'mid-life crisis'.
He was taking saquinavir, ritonavir, tenofovir, and ddI with few side effects. He was also taking Prozac for depression. He had an undetectable viral load. Counselling has helped him to cope.
Chronic health issues
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HIV
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Aged 36-40
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Interview 28
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Was able to identify the time he seroconverted because he and his partner tested together and his first two tests were negative.
He currently has an undetectable viral load and about 900 CD4 cells. He did not respond well to earlier regimes, but is now doing well on 'salvage therapy,' although his medication has numerous side-effects.
Chronic health issues
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HIV
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Aged 36-40
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Interview 15
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Feels he contracted HIV from a partner who was not aware of their HIV infection. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
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Aged 41-45
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Interview 08
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Initially wondered how she got HIV but then felt the question could not be usefully answered. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
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Aged 36-40
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Interview 35
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He believed that a partner was responsible for his HIV infection. (Read by an actor.)
He turned up in the health system with TB in the mid-1990s, and was tested for HIV. He has an undetectable viral load and 400 CD4 cells. He accesses African support groups and the Internet for support. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
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Aged 31-35
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Interview 37
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He mistakenly believed himself to be HIV negative and so it upset him when his partner insisted on condoms. (Read by an actor.)
He feels that he is a stronger person because of his experience with HIV. He is not currently on medication and had 680 CD4 cells. He now takes care of himself through exercise and diet. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
>>
Aged 36-40
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Interview 17
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At the time of his diagnosis, despite a strong bond there was too much else to think about to consider reviving sex in their relationship.
He took time to work out who to disclose to and to make treatment decisions (he currently takes Combivir and efavirenz). He initially suffered mental health side-effects (e.g. trouble sleeping, irratibility) but now has few problems with medication.
Chronic health issues
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HIV
>>
Aged 36-40
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Interview 20
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He can't cope with the idea that his partner might be upset by his HIV. (Read by an actor.)
He started treatment soon after diagnosis (efavirenz and Combavir) and his viral load quickly became undetectable and he had few side effects. He resists blaming his life problems on HIV. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
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Interview 12
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While they always had safe sex, using condoms felt like missing out on a reward.
He suffered from severe diarrhoea and peripheral neuropathy while taking an earlier combination of anti-HIV drugs, but he currently takes nelfinavir, 3TC and abacavir with few side effects. He has had to cope with HIV-related illness, depression and mania at various times in his life.
Chronic health issues
>>
HIV
>>
Aged 31-35
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Interview 51
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He feels his partner is worried about becoming infected with HIV and he finds it hard to enjoy sex. (Read by an actor.)
His immigration status was uncertain at the time of the interview. His approach to HIV includes exercise, good food and support groups. He tells his sexual partners about his HIV and he is also very careful to have safe sex. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
>>
Aged 36-40
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Interview 03
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Although his HIV negative partners said they had no problems with HIV, HIV did create problems.
Has slowly built up his strength since his illness, becoming highly expert in HIV. He did extensive self-development work on himself. He has 870 CD4 cells and currently takes nevirapine, abacavir, and lamivudine with minimal side effects.
Chronic health issues
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HIV
>>
Aged 31-35
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Interview 14
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It was difficult to convince his HIV negative partner that he should use condoms for anal sex.
He believes dealing with multiple difficulties in his life like HIV has made him stronger. He takes Fosamprenavir, Ritonavir, Tenofovir and Emtricitabine (6 tablets once in the evening) with few side effects.
Chronic health issues
>>
HIV
>>
Aged 46-55
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Interview 04
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Says that men who do not know their own HIV status and yet react badly to his HIV are behaving foolishly.
He was taking saquinavir, ritonavir, tenofovir, and ddI with few side effects. He was also taking Prozac for depression. He had an undetectable viral load. Counselling has helped him to cope.
Chronic health issues
>>
HIV
>>
Aged 31-35
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Interview 51
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He told his partner about his HIV and he uses three condoms to be extra safe*. (Read by an actor.)
His immigration status was uncertain at the time of the interview. His approach to HIV includes exercise, good food and support groups. He tells his sexual partners about his HIV and he is also very careful to have safe sex. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
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Aged 31-35
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Interview 18
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When she told an ex-partner about her HIV diagnosis he became threatening. (Read by an actor.)
Her current combination of abacavir, AZT and 3TC has few side-effects. She feels much better having started exercising and improving her diet. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
>>
Aged 36-40
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Interview 15
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He met a man who seemed to avoid him because of his HIV status. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
>>
Aged 46-55
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Interview 16
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Retirement has meant keeping busy while surviving on less money.
He was taking a combination of anti-virals (zidovudine, nevirapine and abacavir) with no side effects. He has less energy than he once did, but is not sure if this is due to HIV or getting older.
Chronic health issues
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HIV
>>
Aged 36-40
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Interview 40
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Her partner did not believe she was HIV positive.
She kept her HIV status secret for many years as she believed this was necessary for her survival. Currently in the UK, she is on a new anti-viral combination and the virus is now undetectable in her blood.
Chronic health issues
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HIV
>>
Aged 46-55
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Interview 24
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Found it easy to introduce condoms into his sex life with his wife.
At one stage, he was very unwell and his CD4 cells were as low as 200. Since drug rehabilitation in the Russian Exodus Christian charity, he has been able to get his life back on track and his CD4 cells are now 900.
Chronic health issues
>>
HIV
>>
Aged 20-30
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Interview 49
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He has tried to live like people without HIV and explains why he can't.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
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HIV
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Aged 46-55
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Interview 04
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He found he had the strength to deal with life difficulties like the death of his partner.
He was taking saquinavir, ritonavir, tenofovir, and ddI with few side effects. He was also taking Prozac for depression. He had an undetectable viral load. Counselling has helped him to cope.
Chronic health issues
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HIV
>>
Aged 56-65
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Interview 25
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Although not religious, he found the ceremony at his partner's funeral an enormous help.
He currently takes didanosine, ritonavir, lamivudine and saquinavir for HIV. He has suffered from non-painful peripheral neuropathy and some lipodystrophy. With treatment, he now looks forward to a long retirement.
Chronic health issues
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HIV
>>
Aged 36-40
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Interview 15
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His partner tested positive with HIV so he prepared himself for being positive also. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
>>
Aged 41-45
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Interview 22
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Talks about how she draws strength from her HIV clinic.
Her anti-HIV drugs (Kaletra and Combivir) brought her viral load down to undetectable at the time of interview. She has strong faith that Jesus has healed her in combination with her medical care.
Chronic health issues
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HIV
>>
Aged 20-30
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Interview 47
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She faced multiple life problems including asylum seeking, lack of work and separation from her children. (Read by an actor.)
H47 is currently on nevirapine and Combivir with few side-effects. Attending a number of support groups is a good way for her to gain information, network and get training. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
>>
Aged 46-55
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Interview 42
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Prayer and support groups helped her to move on from her sense of betrayal and anger that her husband had infected her with HIV. (Read by an actor.)
She became sick in the UK while visiting some of her children who live here, and she feels she is now 'stuck here.' The uncertainty over her immigration status is very stressful and does get her down. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 41-45
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Interview 30
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Prepared himself and his wife before he disclosed his HIV diagnosis to her. (Read by an actor.)
He was admitted to hospital with a high temperature and headaches where he was diagnosed with HIV. He negotiated his current treatment regime with his doctor (Kaletra and efavirenz), (Video and audio clips read by an actor.)
Topic
Chronic health issues
>>
HIV
>>
Sex in relationships
>>
Sex in relationships
Sex in relationships
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