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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 23
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Was shocked by the way a doctor in Accident and Emergency treated him. (Read by an actor.)
He was shocked when he found out he was actually infected with HIV, and he wanted to kill himself. Since his viral load has reduced to undetectable with medication (currently emtricitabine, efavirenz, tenofovir), he has felt much better physically and psychologically. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 41-45
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Interview 08
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Her doctors were good at communicating with her so she was happy to go along with their decision about starting HIV medication. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
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Interview 03
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He was used to collaborating in treatment decisions with his HIV consultant and felt his oncologist did not treat him as an equal.
Has slowly built up his strength since his illness, becoming highly expert in HIV. He did extensive self-development work on himself. He has 870 CD4 cells and currently takes nevirapine, abacavir, and lamivudine with minimal side effects.
Chronic health issues
>>
HIV
>>
Aged 46-55
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Interview 16
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Believes that being optimistic can help people to cope with health problems if they arise.
He was taking a combination of anti-virals (zidovudine, nevirapine and abacavir) with no side effects. He has less energy than he once did, but is not sure if this is due to HIV or getting older.
Chronic health issues
>>
HIV
>>
Aged 46-55
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Interview 38
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People need to live life in the present, but responsibly.
Although he has developed a lot of resistance to anti-HIV drugs, he is currently doing well on T20, TMC114 (as part of a trial), FTC, tenofovir and abacavir, and has an undetectable viral load.
Chronic health issues
>>
HIV
>>
Aged 41-45
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Interview 08
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Her doctor told her about her HIV status calmly, with empathy and advice, allowing her space to react. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
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Interview 35
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A hospital doctor wrote to his GP about his HIV and so he is now suspicious of health professionals. (Read by an actor.)
He turned up in the health system with TB in the mid-1990s, and was tested for HIV. He has an undetectable viral load and 400 CD4 cells. He accesses African support groups and the Internet for support. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 41-45
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Interview 08
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Feels that God answered her prayer for healing. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 46-55
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Interview 19
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Discrimination against HIV positive people can, and should, be challenged.
Although medically retired, he is very active and works voluntarily. He is currently on lopinavir, 3TC, abacavir, ddI and tenofovir, with 1700 viral copies. Side-effects have included lipodystrophy.
Chronic health issues
>>
HIV
>>
Aged 46-55
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Interview 38
>>
Talks about how people need to live life in the present, but responsibly.
Although he has developed a lot of resistance to anti-HIV drugs, he is currently doing well on T20, TMC114 (as part of a trial), FTC, tenofovir and abacavir, and has an undetectable viral load.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 03
>>
Describes how he reacted to - and tried to deal with - the sudden prospect that he might die.
Has slowly built up his strength since his illness, becoming highly expert in HIV. He did extensive self-development work on himself. He has 870 CD4 cells and currently takes nevirapine, abacavir, and lamivudine with minimal side effects.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 11
>>
Explains how you could deal with being preached at: You can always change your doctor if you are unhappy with him or her.
He has never needed medication for HIV. Even though he did not think he would live past his 20s, he is now facing middle age.
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