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HIV
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Full list of topics
Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 01
>>
It took him some time before he was prepared to go for a HIV test.
A long term survivor who has done a considerable amount of voluntary work in Aids, uses complementary health approaches, and is concerned about HIV discrimination and stigma.
Chronic health issues
>>
HIV
>>
Aged 41-45
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Interview 02
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How he thought about his future when first diagnosed.
Now on efavirenz and Combivir, his viral load is undetectable. He has suffered few side-effects. He had counseling to help him cope, and looks forward to getting back to work.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 17
>>
He is grateful his doctor allowed him the time to find out for himself - and decide about - his antiviral treatments.
He took time to work out who to disclose to and to make treatment decisions (he currently takes Combivir and efavirenz). He initially suffered mental health side-effects (e.g. trouble sleeping, irratibility) but now has few problems with medication.
Chronic health issues
>>
HIV
>>
Aged 41-45
>>
Interview 02
>>
What it felt like going for a HIV test result.
Now on efavirenz and Combivir, his viral load is undetectable. He has suffered few side-effects. He had counseling to help him cope, and looks forward to getting back to work.
Chronic health issues
>>
HIV
>>
Aged 41-45
>>
Interview 08
>>
Her doctors were good at communicating with her so she was happy to go along with their decision about starting HIV medication. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 49
>>
He has tried to live like people without HIV and explains why he can't.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 06
>>
Says people should avoid allowing HIV to take over their lives and explains what they should focus on.
He is currently receiving psychotherapy, mainly for his HIV diagnosis and sexual assault. On benefits, he keeps himself busy, and is positive about life and returning to work.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 15
>>
His partner tested positive with HIV so he prepared himself for being positive also. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 17
>>
Taking your time and developing a relationship with your doctor is important.
He took time to work out who to disclose to and to make treatment decisions (he currently takes Combivir and efavirenz). He initially suffered mental health side-effects (e.g. trouble sleeping, irratibility) but now has few problems with medication.
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 23
>>
He thought that a 'positive' test result was a good thing and so at first could not understand his doctor's concern. (Read by an actor.)
He was shocked when he found out he was actually infected with HIV, and he wanted to kill himself. Since his viral load has reduced to undetectable with medication (currently emtricitabine, efavirenz, tenofovir), he has felt much better physically and psychologically. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 03
>>
Living with a life threatening illness helped him to focus 'on the present' and what he needed to have a better quality of life.
Has slowly built up his strength since his illness, becoming highly expert in HIV. He did extensive self-development work on himself. He has 870 CD4 cells and currently takes nevirapine, abacavir, and lamivudine with minimal side effects.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 12
>>
He was shocked that he progressed to Aids so quickly but he found ways to avoid thinking about the seriousness of the diagnosis.
He suffered from severe diarrhoea and peripheral neuropathy while taking an earlier combination of anti-HIV drugs, but he currently takes nelfinavir, 3TC and abacavir with few side effects. He has had to cope with HIV-related illness, depression and mania at various times in his life.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 11
>>
Explains how you could deal with being preached at: You can always change your doctor if you are unhappy with him or her.
He has never needed medication for HIV. Even though he did not think he would live past his 20s, he is now facing middle age.
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 37
>>
He was depressed and had little support when he was diagnosed with HIV and yet he now feels stronger than ever. (Read by an actor.)
He feels that he is a stronger person because of his experience with HIV. He is not currently on medication and had 680 CD4 cells. He now takes care of himself through exercise and diet. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 41-45
>>
Interview 30
>>
Prepared himself and his wife before he disclosed his HIV diagnosis to her. (Read by an actor.)
He was admitted to hospital with a high temperature and headaches where he was diagnosed with HIV. He negotiated his current treatment regime with his doctor (Kaletra and efavirenz), (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 36
>>
Talks about how he encouraged another African man to attend an African support group. (Read by an actor.)
He accesses African support groups, and this helps to relieve the boredom and stress of being 'stuck' while his immigration status is sorted out. He is currently taking efavirenz and Combivir, and has a low viral load. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 43
>>
Was delighted to find that other women with HIV she met in a support group were healthy and not dying. (Read by an actor.)
She has teenage children, and although she found it difficult to tell them about her HIV, they were very supportive. She believes that for women it is vital to seek out others with HIV to share their experiences of HIV. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 12
>>
When he was diagnosed with HIV early on in the epidemic he had good sickness benefits from work and initially enjoyed having time off.
He suffered from severe diarrhoea and peripheral neuropathy while taking an earlier combination of anti-HIV drugs, but he currently takes nelfinavir, 3TC and abacavir with few side effects. He has had to cope with HIV-related illness, depression and mania at various times in his life.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 03
>>
Talks about how he reacted to the news of his Aids diagnosis given his belief in a higher power and the work he had done on himself.
Has slowly built up his strength since his illness, becoming highly expert in HIV. He did extensive self-development work on himself. He has 870 CD4 cells and currently takes nevirapine, abacavir, and lamivudine with minimal side effects.
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 42
>>
Prayer and support groups helped her to move on from her sense of betrayal and anger that her husband had infected her with HIV. (Read by an actor.)
She became sick in the UK while visiting some of her children who live here, and she feels she is now 'stuck here.' The uncertainty over her immigration status is very stressful and does get her down. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 03
>>
Living with a life threatening illness helped him to focus 'on the present' and what he needed to have a better quality of life.
Has slowly built up his strength since his illness, becoming highly expert in HIV. He did extensive self-development work on himself. He has 870 CD4 cells and currently takes nevirapine, abacavir, and lamivudine with minimal side effects.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 20
>>
He has found a way to relate to the virus that makes sense of his experience. (Read by an actor.)
He started treatment soon after diagnosis (efavirenz and Combavir) and his viral load quickly became undetectable and he had few side effects. He resists blaming his life problems on HIV. (Video and audio clips read by an actor.)
Topic
Chronic health issues
>>
HIV
>>
Getting a diagnosis
>>
Getting a diagnosis
Getting a diagnosis
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 12
>>
Was facing multiple problems and was very angry.
He suffered from severe diarrhoea and peripheral neuropathy while taking an earlier combination of anti-HIV drugs, but he currently takes nelfinavir, 3TC and abacavir with few side effects. He has had to cope with HIV-related illness, depression and mania at various times in his life.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 15
>>
Feels he contracted HIV from a partner who was not aware of their HIV infection. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 17
>>
At the time of his diagnosis, despite a strong bond there was too much else to think about to consider reviving sex in their relationship.
He took time to work out who to disclose to and to make treatment decisions (he currently takes Combivir and efavirenz). He initially suffered mental health side-effects (e.g. trouble sleeping, irratibility) but now has few problems with medication.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 15
>>
He met a man who seemed to avoid him because of his HIV status. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 49
>>
Being so young he felt that older people with HIV did not understand him.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
>>
HIV
>>
Aged 41-45
>>
Interview 08
>>
Has to keep strong for her family despite multiple tragedies and becoming HIV positive. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 20
>>
He loves his work but thinks that some people with a HIV diagnosis opt out of work or become angry. (Read by an actor.)
He started treatment soon after diagnosis (efavirenz and Combavir) and his viral load quickly became undetectable and he had few side effects. He resists blaming his life problems on HIV. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 46
>>
She initially thought being HIV positive meant dying and so felt hopeless. (Read by an actor.)
Although her CD4 count was as low as 40 when she ill, it is now 700 and she feels better than ever. Counselling, support groups and staff at GUM clinics have been the most helpful to her. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 24
>>
He was addicted to heroin and tells how turning to Jesus as a trusted friend was important in his recovery.
At one stage, he was very unwell and his CD4 cells were as low as 200. Since drug rehabilitation in the Russian Exodus Christian charity, he has been able to get his life back on track and his CD4 cells are now 900.
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 27
>>
It took him a year until he was able to express his real feelings about being diagnosed HIV positive. (Read by an actor.)
He currently has a viral load of about 160,000 and 360 CD cells, and has not yet begun anti-HIV medication. His diagnosis has been a catalyst in facing up to many issues in his life. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 41-45
>>
Interview 30
>>
Says that African men tend to go into denial when diagnosed with HIV. (Read by an actor.)
He was admitted to hospital with a high temperature and headaches where he was diagnosed with HIV. He negotiated his current treatment regime with his doctor (Kaletra and efavirenz), (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 49
>>
He has tried to live like people without HIV and explains why he can't.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 24
>>
He felt depressed and useless after his HIV diagnosis.
At one stage, he was very unwell and his CD4 cells were as low as 200. Since drug rehabilitation in the Russian Exodus Christian charity, he has been able to get his life back on track and his CD4 cells are now 900.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 11
>>
Explains why it is that people must accept their HIV.
He has never needed medication for HIV. Even though he did not think he would live past his 20s, he is now facing middle age.
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 18
>>
A midwife and counsellor helped her when she got her HIV results. (Read by an actor.)
Her current combination of abacavir, AZT and 3TC has few side-effects. She feels much better having started exercising and improving her diet. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 27
>>
Says that reactions to being HIV positive are all different and follow no set course. (Read by an actor.)
He currently has a viral load of about 160,000 and 360 CD cells, and has not yet begun anti-HIV medication. His diagnosis has been a catalyst in facing up to many issues in his life. (Video and audio clips read by an actor.)
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