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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
>>
HIV
>>
Aged 56-65
>>
Interview 34
>>
He needed to accept that the medication would work before he took it correctly. (Read by an actor.)
His wife took the news about his HIV very badly and their relationship broke up. He felt depressed and had suicidal thoughts. The care of HIV clinic staff and support groups were very important to his survival. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
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Aged 31-35
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Interview 14
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He had difficulties taking his medication at a regular time even though he only took them once a day.
He believes dealing with multiple difficulties in his life like HIV has made him stronger. He takes Fosamprenavir, Ritonavir, Tenofovir and Emtricitabine (6 tablets once in the evening) with few side effects.
Chronic health issues
>>
HIV
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Aged 41-45
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Interview 10
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Had real trouble taking his medication because of the problems he encountered.
Today, he has considerable support from friends and family, and takes a combination of anti-retroviral drugs with few side effects (abacavir, 3TC, Kaletra). He is now in good health except for occasional chest infections.
Chronic health issues
>>
HIV
>>
Aged 36-40
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Interview 15
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He is flexible and very successful with taking his medication. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
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Aged 36-40
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Interview 20
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He found out there was some flexibility in his medication regime. (Read by an actor.)
He started treatment soon after diagnosis (efavirenz and Combavir) and his viral load quickly became undetectable and he had few side effects. He resists blaming his life problems on HIV. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 31-35
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Interview 31
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With anti-HIV drugs becoming simplified it makes them easier to take. (Read by an actor.)
While he did not become very ill with HIV, his GP proposed HIV testing when he had skin rashes in 2000. An early diagnosis meant it was possible for his health to be monitored. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
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Interview 28
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He has few anti- HIV drug options left and so is careful about taking medication.
He currently has an undetectable viral load and about 900 CD4 cells. He did not respond well to earlier regimes, but is now doing well on 'salvage therapy,' although his medication has numerous side-effects.
Chronic health issues
>>
HIV
>>
Aged 56-65
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Interview 25
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Although his routines are usually stable he has to plan his medication ahead if he travels.
He currently takes didanosine, ritonavir, lamivudine and saquinavir for HIV. He has suffered from non-painful peripheral neuropathy and some lipodystrophy. With treatment, he now looks forward to a long retirement.
Chronic health issues
>>
HIV
>>
Aged 46-55
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Interview 38
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Not everyone has access to effective medication, and the consequences of not taking medication can be fatal.
Although he has developed a lot of resistance to anti-HIV drugs, he is currently doing well on T20, TMC114 (as part of a trial), FTC, tenofovir and abacavir, and has an undetectable viral load.
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