Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs

Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health

Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents

Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners

Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know

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Chronic health issues >> HIV >> Aged 36-40 >> Interview 12 >> Felt he was badly advised and so missed out on medical retirement in 1990.

He suffered from severe diarrhoea and peripheral neuropathy while taking an earlier combination of anti-HIV drugs, but he currently takes nelfinavir, 3TC and abacavir with few side effects. He has had to cope with HIV-related illness, depression and mania at various times in his life.

Chronic health issues >> HIV >> Aged 56-65 >> Interview 25 >> He is enjoying his retirement and has enrolled on a full time pottery course.

He currently takes didanosine, ritonavir, lamivudine and saquinavir for HIV. He has suffered from non-painful peripheral neuropathy and some lipodystrophy. With treatment, he now looks forward to a long retirement.

Chronic health issues >> HIV >> Aged 46-55 >> Interview 16 >> Retirement has meant keeping busy while surviving on less money.

He was taking a combination of anti-virals (zidovudine, nevirapine and abacavir) with no side effects. He has less energy than he once did, but is not sure if this is due to HIV or getting older.

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