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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 44
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Says the question about how her HIV infection happened is unhelpful and she feels annoyed that doctors ask. (Read by an actor.)
She has not told some of her children about her HIV because some are still in Africa and may suffer ill treatment due to stigma. Support groups and prayer give her strength, although she does still get depressed at times. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
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Aged 46-55
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Interview 19
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Talks about the risk of getting HIV in unsafe sex.
Although medically retired, he is very active and works voluntarily. He is currently on lopinavir, 3TC, abacavir, ddI and tenofovir, with 1700 viral copies. Side-effects have included lipodystrophy.
Chronic health issues
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HIV
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Aged 41-45
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Interview 08
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Initially wondered how she got HIV but then felt the question could not be usefully answered. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
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Aged 36-40
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Interview 06
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Seroconverted after his drink was spiked at a bar and he was sexually assaulted.
He is currently receiving psychotherapy, mainly for his HIV diagnosis and sexual assault. On benefits, he keeps himself busy, and is positive about life and returning to work.
Chronic health issues
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HIV
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Aged 56-65
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Interview 25
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He assumed he had got HIV from his long-term partner and so had unprotected sex with a HIV positive man.
He currently takes didanosine, ritonavir, lamivudine and saquinavir for HIV. He has suffered from non-painful peripheral neuropathy and some lipodystrophy. With treatment, he now looks forward to a long retirement.
Chronic health issues
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HIV
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Aged 36-40
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Interview 35
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He believed that a partner was responsible for his HIV infection. (Read by an actor.)
He turned up in the health system with TB in the mid-1990s, and was tested for HIV. He has an undetectable viral load and 400 CD4 cells. He accesses African support groups and the Internet for support. (Video and audio clips read by an actor.)
Chronic health issues
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HIV
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Aged 20-30
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Interview 49
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Believes in prayer, choosing how to respond to life difficulty, and a higher reason for him being infected with HIV.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 19
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Believes that other sexually transmitted infections can make HIV infection more likely.
Although medically retired, he is very active and works voluntarily. He is currently on lopinavir, 3TC, abacavir, ddI and tenofovir, with 1700 viral copies. Side-effects have included lipodystrophy.
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