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Experiences of health care :
Getting a diagnosis
Getting health and social care
Making decisions about treatment
Taking anti-HIV drugs
Challenges of anti-HIV drugs
Looking after yourself :
Coping with mental health problems
Dealing with your thoughts
Talking about it
Becoming informed
Gaining power and strength
Spirituality and religion
Holistic health
Disclosure, discrimination and other challenges :
Secrecy and telling people
Support groups
Dealing with difficulties, finances and benefits
Work and routine
Prejudice, stigma and discrimination
Telling children and parents
Negotiating Sex :
How people became infected
Casual sexual encounters
Sex in relationships
Telling sexual partners
Looking ahead :
Living now & in the future
Illness and death
Finally, what people with HIV want you to know
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HIV
Subject index
Clip
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 24
>>
He felt depressed and useless after his HIV diagnosis.
At one stage, he was very unwell and his CD4 cells were as low as 200. Since drug rehabilitation in the Russian Exodus Christian charity, he has been able to get his life back on track and his CD4 cells are now 900.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 11
>>
Explains why it is that people must accept their HIV.
He has never needed medication for HIV. Even though he did not think he would live past his 20s, he is now facing middle age.
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 49
>>
He has tried to live like people without HIV and explains why he can't.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
>>
HIV
>>
Aged 46-55
>>
Interview 24
>>
He was addicted to heroin and tells how turning to Jesus as a trusted friend was important in his recovery.
At one stage, he was very unwell and his CD4 cells were as low as 200. Since drug rehabilitation in the Russian Exodus Christian charity, he has been able to get his life back on track and his CD4 cells are now 900.
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 18
>>
A midwife and counsellor helped her when she got her HIV results. (Read by an actor.)
Her current combination of abacavir, AZT and 3TC has few side-effects. She feels much better having started exercising and improving her diet. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 27
>>
It took him a year until he was able to express his real feelings about being diagnosed HIV positive. (Read by an actor.)
He currently has a viral load of about 160,000 and 360 CD cells, and has not yet begun anti-HIV medication. His diagnosis has been a catalyst in facing up to many issues in his life. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 41-45
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Interview 30
>>
Says that African men tend to go into denial when diagnosed with HIV. (Read by an actor.)
He was admitted to hospital with a high temperature and headaches where he was diagnosed with HIV. He negotiated his current treatment regime with his doctor (Kaletra and efavirenz), (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 31-35
>>
Interview 46
>>
She initially thought being HIV positive meant dying and so felt hopeless. (Read by an actor.)
Although her CD4 count was as low as 40 when she ill, it is now 700 and she feels better than ever. Counselling, support groups and staff at GUM clinics have been the most helpful to her. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 12
>>
Was facing multiple problems and was very angry.
He suffered from severe diarrhoea and peripheral neuropathy while taking an earlier combination of anti-HIV drugs, but he currently takes nelfinavir, 3TC and abacavir with few side effects. He has had to cope with HIV-related illness, depression and mania at various times in his life.
Chronic health issues
>>
HIV
>>
Aged 20-30
>>
Interview 49
>>
Being so young he felt that older people with HIV did not understand him.
Clint progressed to Aids defining illnesses relatively quickly. Fortunately, combination therapy had come in by then, and his original combination (Combivir, efavirenz and nelfinavir) is still effective today.
Chronic health issues
>>
HIV
>>
Aged 41-45
>>
Interview 08
>>
Has to keep strong for her family despite multiple tragedies and becoming HIV positive. (Read by an actor.)
Now on anti-retroviral treatment (3TC, lopinavir, ddI), she is feeling much better and has returned to work. Her current CD4 cells are 400. Religion is important to her positive attitude. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 20
>>
He loves his work but thinks that some people with a HIV diagnosis opt out of work or become angry. (Read by an actor.)
He started treatment soon after diagnosis (efavirenz and Combavir) and his viral load quickly became undetectable and he had few side effects. He resists blaming his life problems on HIV. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 15
>>
Feels he contracted HIV from a partner who was not aware of their HIV infection. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 17
>>
At the time of his diagnosis, despite a strong bond there was too much else to think about to consider reviving sex in their relationship.
He took time to work out who to disclose to and to make treatment decisions (he currently takes Combivir and efavirenz). He initially suffered mental health side-effects (e.g. trouble sleeping, irratibility) but now has few problems with medication.
Chronic health issues
>>
HIV
>>
Aged 36-40
>>
Interview 15
>>
He met a man who seemed to avoid him because of his HIV status. (Read by an actor.)
He is determined not to let HIV rule his life. He takes Sustiva/Combivir with no current side effects. He exercises and is careful about his diet to stay healthy. (Video and audio clips read by an actor.)
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