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Mental health
Mental health: ethnic minority experiences
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Discovery :
Onset of mental health problems
Getting a diagnosis
Hallucinations & delusions
Anxiety, negativity, mania & loss of energy
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Views about causes: social & environmental factors
Living with mental health problems :
Ways of describing mental health problems
Losses & gains: affects on everyday lives
Discrimination - mental health
The role of family, friends & carers
Support from charities & support groups
Complementary & alternative medicine (CAM)
The role of faith, spirituality & religion
What else helps
Getting information
Recovery
Experience of mental health services :
Outpatient & community services
Being in hospital
Being sectioned under the Mental Health Act
Prescribed medication & side effects
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Mental health: ethnic minority experiences
Subject index
Clip
Mental health
>>
Mental health: ethnic minority experiences
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Aged 40 - 49
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Niabingi - Interview 01
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Niabingi compares professionals with a plaster - they help people to heal. She says listening and empathy makes people feel comfortable to talk. (Play
This 42 year old Black, British born woman was diagnosed at the age of 25 with paranoid schizophrenia but disagrees with the paranoid part. She believes that her mental distress was caused by the racism she experienced when growing up.
Mental health
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Mental health: ethnic minority experiences
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Aged 50 - 59
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Edward - Interview 10
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Edward feels people need time to talk and says challenging the patient's delusions may undermine the psychiatrist's authority.
Edward, 59, was born in Australia and diagnosed with schizophrenia aged 20. A former head teacher, he took early retirement for health reasons and now stacks supermarket shelves. He believes his condition is caused by genetic and environmental factors.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Dolly - Interview 14
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She'd like health professionals training to involve people with mental health problems and suggests professionals relate to service users like a membe
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
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Mental health: ethnic minority experiences
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Aged 60 - 69
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Anton - Interview 13
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Anton says it would help if psychiatrists had personal experience of mental health problems because then they would have a better understanding.
Anton, 64, is an Asian man who came from Sri Lanka to the UK in 1962. He was diagnosed with bipolar disorder aged 45 and was given various medicines but none worked. Now he is not receiving any treatment: he was told by doctors they had "given up" on him.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Jay - Interview 27
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Jay says to professionals: "Stop seeing diagnosis, see people".
Jay, 42, describes herself as Black-British. She was diagnosed with schizoaffective disorder aged 34 and now works in mental health. Jay's voices say mainly negative things, but two voices encourage her and give her tenacity and drive.
Mental health
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Mental health: ethnic minority experiences
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Aged 60 - 69
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H. Y. Leung - Interview 29
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She would like health professionals to understand people with mental health problems better and to be friendly and welcoming.
HY Leung, 60, was admitted to a London psychiatric hospital. She says her doctors don't understand what she's going through. She feels God accepts and understands her, which supports her to face the challenges of her illnesses and to carry on her life.
Mental health
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Mental health: ethnic minority experiences
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Aged 20 - 29
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Ali - Interview 33
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Ali feels professionals can sometimes be like a "robot" and could show more kindness and understanding.
Ali, 27, was born in Pakistan and has been studying and working in the UK. Ali says that although it's easier to explain things to professionals from the same culture, as long as the other person is understanding, you can always clarify things.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Michael - Interview 31
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Professionals need to be "culturally competent" and aware of people's "micro-ethnicity" so that they don't fall back on "old fashioned" stereotypes.
Michael, 49, describes himself as a European Ashkenazi Jew. He has been given a variety of diagnoses, including bipolar affective disorder, personality disorder, paranoid schizophrenia, learning disability, and severe mental impairment.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Sara - Interview 32
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Sara suggests that professionals listen, not make assumptions, and realise that people with mental health problems have "the same dreams and desires a
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Devon - Interview 12
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Devon says professionals could treat people with mental health problems as a whole: mentally, physically and spiritually.
Devon, 49, is married and was born in Jamaica; he came to the UK in 1965. He was diagnosed with paranoid schizophrenia aged 22 and depression aged 48. He is a founder member of the organization Sound Minds - www.soundminds.co.uk - a user-led music project.
Mental health
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Mental health: ethnic minority experiences
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Aged 20 - 29
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Tariq - Interview 06
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Tariq thought it would be helpful if professionals work more with families, and provide information in layman's language and contact details for organ
This 21 year old Asian student was diagnosed with manic depression and then schizophrenia. He disagrees that the mental health system is institutionally racist, saying that he encountered discrimination due to his mental health not his ethnicity.
Mental health
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Mental health: ethnic minority experiences
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Aged 60 - 69
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Mae - Interview 04
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Mae says there should be more support for lonely or elderly people with mental health problems and more help in police stations. (Played by an actor).
This 62 year old woman has manic depression and describes herself as mixed race. She enjoys life now and is glad to be alive. She thinks going to groups is important and says black families sometimes push away relatives with mental health problems.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Michael - Interview 31
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People with mental health problems should be considered vulnerable in terms of their physical safety and at risk of medical neglect.
Michael, 49, describes himself as a European Ashkenazi Jew. He has been given a variety of diagnoses, including bipolar affective disorder, personality disorder, paranoid schizophrenia, learning disability, and severe mental impairment.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Shaukat - Interview 17
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Shaukat says it would help his social anxiety if he had more opportunity to practice being in situations that he feared with his therapist, or with an
Shaukat, 36, was born in Pakistan and came to the UK aged 9. He has been diagnosed with social anxiety disorder and general anxiety disorder. He finds going to support groups and talking to other people with similar experiences supportive and helpful.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Ugo - Interview 02
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Ugo says there should be more services for women and minority ethnic groups.
This Black-British woman became depressed in 1981 after 6 miscarriages, and losing her husband and home. She's also diagnosed with personality disorder (which she disagrees with) and lost custody of her child because of her mental health problems.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Jay - Interview 27
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Jay says services should cater for people from different backgrounds as part of their normal practice, and not only on special occasions because it he
Jay, 42, describes herself as Black-British. She was diagnosed with schizoaffective disorder aged 34 and now works in mental health. Jay's voices say mainly negative things, but two voices encourage her and give her tenacity and drive.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Niabingi - Interview 01
>>
Niabingi says there should be more funding for Black health organisations, more consultation and more research. (Played by an actor).
This 42 year old Black, British born woman was diagnosed at the age of 25 with paranoid schizophrenia but disagrees with the paranoid part. She believes that her mental distress was caused by the racism she experienced when growing up.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Dolly - Interview 14
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Dolly says she thinks the mental health system "stinks" and suggests that people with mental health problems should have input into policy.
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Edward - Interview 10
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Edward would like to see more research into the nature of the chemical make up of cells in the brain - although he believes environmental factors are
Edward, 59, was born in Australia and diagnosed with schizophrenia aged 20. A former head teacher, he took early retirement for health reasons and now stacks supermarket shelves. He believes his condition is caused by genetic and environmental factors.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
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Hanif - Interview 30
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Hanif says he thinks there has not been enough research in the UK into the effectiveness of faith based interventions.
Hanif, 49, describes himself as Indian and has lived in the UK for 25 years. Hanif experienced cannabis induced psychosis and was diagnosed with bipolar disorder aged 23. Hanif works in mental health, campaigning to reduce stigma.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Hanif - Interview 30
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Hanif says professionals should campaign to reduce the stigma associated with mental health problems and for more funding for the mental health sector
Hanif, 49, describes himself as Indian and has lived in the UK for 25 years. Hanif experienced cannabis induced psychosis and was diagnosed with bipolar disorder aged 23. Hanif works in mental health, campaigning to reduce stigma.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Imani - Interview 26
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Imani says professionals should make themselves available in the community to reduce the fear and stigma surrounding mental health problems and mental
Imani, 48, describes herself as African-Caribbean, and was born in the UK. She was diagnosed with depression aged 47 having survived an abusive marriage. Imani is feeling better now she is taking antidepressants and having Christian counselling.
Mental health
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Mental health: ethnic minority experiences
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Aged 20 - 29
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Patricia - Interview 16
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She found it difficult to describe panic attacks in her own language and says if you can't speak English it's more difficult to explain mental health
Patricia, 25, describes herself as White European. She was born in Portugal and came to the UK to work and has been here for 9 months. For the past five years, Patricia has felt anxious every day and experienced numerous panic attacks.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Shaukat - Interview 17
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He couldn't describe his anxiety to the doctor and was worried about being given the wrong medication or being sent to hospital, so he told him he had
Shaukat, 36, was born in Pakistan and came to the UK aged 9. He has been diagnosed with social anxiety disorder and general anxiety disorder. He finds going to support groups and talking to other people with similar experiences supportive and helpful.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
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Jay - Interview 27
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When she was in hospital, she didn't tell anyone that she heard voices, only that her "head was noisy".
Jay, 42, describes herself as Black-British. She was diagnosed with schizoaffective disorder aged 34 and now works in mental health. Jay's voices say mainly negative things, but two voices encourage her and give her tenacity and drive.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
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Reena - Interview 07
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She believes people use different terms to describe how they feel but it all stems from depression.
Reena, 42, describes herself as Bangladeshi, and came to the UK aged 9. She was diagnosed with depression in her early 30s.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Niabingi - Interview 01
>>
Niabingi thought hearing voices was "natural", but when her mum first took her to the doctors, they said nothing was wrong. (Played by an actor).
This 42 year old Black, British born woman was diagnosed at the age of 25 with paranoid schizophrenia but disagrees with the paranoid part. She believes that her mental distress was caused by the racism she experienced when growing up.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
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Sarah - Interview 28
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She told her doctor she had an "uncomfortable" feeling in her chest and back pain. (Original in Cantonese, text in English).
Sarah, a married mother of 4, is Chinese and came to the UK from Hong Kong when she got married. She was diagnosed with depression when she was 46. Sarah gets a lot of comfort from her religion - she says she would feel very depressed without it.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Reena - Interview 07
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She wanted "proper help" from her GP so she told her if they didn't admit her to hospital she would commit suicide or "run away from home". (Audio in
Reena, 42, describes herself as Bangladeshi, and came to the UK aged 9. She was diagnosed with depression in her early 30s.
Mental health
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Mental health: ethnic minority experiences
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Aged 20 - 29
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Patricia - Interview 16
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She was worried that her panic attacks were really a sign of a physical, not psychological problem, even when hospital tests were negative.
Patricia, 25, describes herself as White European. She was born in Portugal and came to the UK to work and has been here for 9 months. For the past five years, Patricia has felt anxious every day and experienced numerous panic attacks.
Mental health
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Mental health: ethnic minority experiences
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Aged 40 - 49
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Rehana - Interview 18
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She also has tinnitus and migraines; she describes similar symptoms for these and her mental health problems and believes they are connected.
Rehana, 49, describes herself as Pakistani and has lived in the UK for 27 years. She experiences severe depression, anxiety and panic attacks. Rehana feels ashamed of having depression and is worried that if people find out they might make fun of her.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Marlene - Interview 23
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She feels like a different person and believes that some of her symptoms might be caused by the menopause and finds it difficult to make people unders
Marlene, 38, was diagnosed with anxiety aged 24. Marlene's father is Pakistani, and her mother is white. Her sister, Shareen, was also interviewed.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 20 - 29
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Patricia - Interview 16
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Patricia says getting information from the internet about other people's experiences has helped her cope with her mental health problem.
Patricia, 25, describes herself as White European. She was born in Portugal and came to the UK to work and has been here for 9 months. For the past five years, Patricia has felt anxious every day and experienced numerous panic attacks.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 60 - 69
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Ataur - Interview 03
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Ataur's antidepressant made his head burn and itch and caused pain in his joints.
This 60 year old, Bangladesh-born man moved to Britain in 1964 and developed depression aged 17. He believes a weak mind makes it difficult for him to deal with life's problems and finds talking with friends the best way to manage his depression.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Shareen - Interview 22
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When she takes her medication she is "knocked out" for 2 days and there is no-one to look after her children or do the housework. (Played by an actor)
Shareen, 39, describes herself as Asian. She was born in the UK but lived in Pakistan between the ages of 11 and 19. Shareen experiences panic attacks, anxiety and depression. Shareen's sister, Marlene was also interviewed.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
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Sara - Interview 32
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Sara was distressed when the antipsychotic she was forced to take gave her facial hair, incontinence and weight gain.
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 60 - 69
>>
H. Y. Leung - Interview 29
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The language barrier meant she and the doctors did not understand each other and she was forced to take medication without knowing what it was. (Audio
HY Leung, 60, was admitted to a London psychiatric hospital. She says her doctors don't understand what she's going through. She feels God accepts and understands her, which supports her to face the challenges of her illnesses and to carry on her life.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 60 - 69
>>
Anton - Interview 13
>>
Anton takes no medication - he felt the doctors gave up on him.
Anton, 64, is an Asian man who came from Sri Lanka to the UK in 1962. He was diagnosed with bipolar disorder aged 45 and was given various medicines but none worked. Now he is not receiving any treatment: he was told by doctors they had "given up" on him.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Dolly - Interview 14
>>
Dolly says doctors do not understand side effects, but is pleased her current doctor supports her in managing dosage herself.
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
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Lorenz - Interview 11
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Lorenz says his psychiatrist took on a "bizarre" appearance; he felt he was being spun around and pushed downstairs.
Lorenz is a 50 year old Black Afro-Caribbean man who has been in the UK since 1966. He was diagnosed with schizophrenia aged 20 and this is now controlled by the anti-psychotic Aripiprazole (10mg daily) enabling Lorenz to work as a social care assistant.
Mental health
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Mental health: ethnic minority experiences
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Aged 30 - 39
>>
David - Interview 15
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David's mental health problems began when he was five years old and he was experiencing racism and bullying.
David, 37, describes his ethnicity as mixed (White/North African). David was diagnosed with post traumatic stress disorder, borderline personality disorder and severe depression, 29 years after he first saw a psychiatrist. David's wife is also his carer.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Judy - Interview 05
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Judy became sick when she couldn't cope any more following the murder of her brother and her mother's illness; other people noticed and she was taken
This Black-Caribbean woman was diagnosed with manic depressive psychosis in Jamaica. She says she has not been back to hospital for 6 years because she hasn't stopped taking her medication, even though it makes her extremely drowsy.
Mental health
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Mental health: ethnic minority experiences
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Aged 20 - 29
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Tariq - Interview 06
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When his symptoms got worse, Tariq told people he trusted and they went with him to the hospital; he was given medication and then the crisis team vis
This 21 year old Asian student was diagnosed with manic depression and then schizophrenia. He disagrees that the mental health system is institutionally racist, saying that he encountered discrimination due to his mental health not his ethnicity.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Dolly - Interview 14
>>
Dolly started to hear voices aged 14 and thought it would go away; she was referred to a child psychiatrist after attempting suicide.
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Hanif - Interview 30
>>
Hanif's father forced him to see a psychiatrist and he thinks it was probably for the best because his behaviour was putting him at risk and he wouldn
Hanif, 49, describes himself as Indian and has lived in the UK for 25 years. Hanif experienced cannabis induced psychosis and was diagnosed with bipolar disorder aged 23. Hanif works in mental health, campaigning to reduce stigma.
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