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Mental health
Mental health: ethnic minority experiences
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Discovery :
Onset of mental health problems
Getting a diagnosis
Hallucinations & delusions
Anxiety, negativity, mania & loss of energy
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Views about causes: social & environmental factors
Living with mental health problems :
Ways of describing mental health problems
Losses & gains: affects on everyday lives
Discrimination - mental health
The role of family, friends & carers
Support from charities & support groups
Complementary & alternative medicine (CAM)
The role of faith, spirituality & religion
What else helps
Getting information
Recovery
Experience of mental health services :
Outpatient & community services
Being in hospital
Being sectioned under the Mental Health Act
Prescribed medication & side effects
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Mental health: ethnic minority experiences
Subject index
Clip
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Imani - Interview 26
>>
Imani saw GPs from different backgrounds and reflects on her expectations and experiences of the consultation.
Imani, 48, describes herself as African-Caribbean, and was born in the UK. She was diagnosed with depression aged 47 having survived an abusive marriage. Imani is feeling better now she is taking antidepressants and having Christian counselling.
Mental health
>>
Mental health: ethnic minority experiences
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Aged 30 - 39
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Sara - Interview 32
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Sara says her mental health team were patronising and didn't listen; she didn't feel like a "free citizen" when she returned to the community after le
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Devon - Interview 12
>>
Devon reflects on why Black people don't want to use services and says the system needs to be made more attractive to them.
Devon, 49, is married and was born in Jamaica; he came to the UK in 1965. He was diagnosed with paranoid schizophrenia aged 22 and depression aged 48. He is a founder member of the organization Sound Minds - www.soundminds.co.uk - a user-led music project.
Mental health
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Mental health: ethnic minority experiences
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Aged 60 - 69
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Anton - Interview 13
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Anton was given conflicting opinions about treatment and when his doctor suggested he look for more information he wished someone would make the decis
Anton, 64, is an Asian man who came from Sri Lanka to the UK in 1962. He was diagnosed with bipolar disorder aged 45 and was given various medicines but none worked. Now he is not receiving any treatment: he was told by doctors they had "given up" on him.
Mental health
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Mental health: ethnic minority experiences
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Aged 50 - 59
>>
Raj - Interview 19
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Raj didn't get enough information and found things out for himself; he would have liked more information about social security benefits and carers. (A
Raj, 55, describes himself as British-Indian. He was born in India and came to the UK aged 13. He developed depression following a heart attack but says it took the doctor a long time to diagnose it. Raj's wife helps care for him.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Niabingi - Interview 01
>>
Niabingi compares professionals with a plaster - they help people to heal. She says listening and empathy makes people feel comfortable to talk. (Play
This 42 year old Black, British born woman was diagnosed at the age of 25 with paranoid schizophrenia but disagrees with the paranoid part. She believes that her mental distress was caused by the racism she experienced when growing up.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Devon - Interview 12
>>
Devon believes that the system makes it difficult for professionals to listen.
Devon, 49, is married and was born in Jamaica; he came to the UK in 1965. He was diagnosed with paranoid schizophrenia aged 22 and depression aged 48. He is a founder member of the organization Sound Minds - www.soundminds.co.uk - a user-led music project.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Edward - Interview 10
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Edward feels people need time to talk and says challenging the patient's delusions may undermine the psychiatrist's authority.
Edward, 59, was born in Australia and diagnosed with schizophrenia aged 20. A former head teacher, he took early retirement for health reasons and now stacks supermarket shelves. He believes his condition is caused by genetic and environmental factors.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 30 - 39
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Dolly - Interview 14
>>
She'd like health professionals training to involve people with mental health problems and suggests professionals relate to service users like a membe
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 60 - 69
>>
Anton - Interview 13
>>
Anton says it would help if psychiatrists had personal experience of mental health problems because then they would have a better understanding.
Anton, 64, is an Asian man who came from Sri Lanka to the UK in 1962. He was diagnosed with bipolar disorder aged 45 and was given various medicines but none worked. Now he is not receiving any treatment: he was told by doctors they had "given up" on him.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Jay - Interview 27
>>
Jay says to professionals: "Stop seeing diagnosis, see people".
Jay, 42, describes herself as Black-British. She was diagnosed with schizoaffective disorder aged 34 and now works in mental health. Jay's voices say mainly negative things, but two voices encourage her and give her tenacity and drive.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 60 - 69
>>
H. Y. Leung - Interview 29
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She would like health professionals to understand people with mental health problems better and to be friendly and welcoming.
HY Leung, 60, was admitted to a London psychiatric hospital. She says her doctors don't understand what she's going through. She feels God accepts and understands her, which supports her to face the challenges of her illnesses and to carry on her life.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 20 - 29
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Ali - Interview 33
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Ali feels professionals can sometimes be like a "robot" and could show more kindness and understanding.
Ali, 27, was born in Pakistan and has been studying and working in the UK. Ali says that although it's easier to explain things to professionals from the same culture, as long as the other person is understanding, you can always clarify things.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 20 - 29
>>
Tariq - Interview 06
>>
Tariq set out his own care plan and says the mental health system is different from how it's portrayed on television. (Played by an actor).
This 21 year old Asian student was diagnosed with manic depression and then schizophrenia. He disagrees that the mental health system is institutionally racist, saying that he encountered discrimination due to his mental health not his ethnicity.
Mental health
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Mental health: ethnic minority experiences
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Aged 60 - 69
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Mae - Interview 04
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Mae says she hasn't had much help, but didn't really want any because she didn't trust professionals. She says she can talk to her GP. (Played by an a
This 62 year old woman has manic depression and describes herself as mixed race. She enjoys life now and is glad to be alive. She thinks going to groups is important and says black families sometimes push away relatives with mental health problems.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 60 - 69
>>
H. Y. Leung - Interview 29
>>
She felt her GP didn't try to understand what was wrong with her, whereas another doctor gave her practical support. (Audio in Cantonese, text in Engl
HY Leung, 60, was admitted to a London psychiatric hospital. She says her doctors don't understand what she's going through. She feels God accepts and understands her, which supports her to face the challenges of her illnesses and to carry on her life.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Edward - Interview 10
>>
Edward says he has a good GP who arranged for him to have an assessment when he told him his history of schizophrenia.
Edward, 59, was born in Australia and diagnosed with schizophrenia aged 20. A former head teacher, he took early retirement for health reasons and now stacks supermarket shelves. He believes his condition is caused by genetic and environmental factors.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Dolly - Interview 14
>>
Her white, male psychiatrist is supportive, but she says it's important that the rest of her mental health team is made up of people from different ba
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Lorenz - Interview 11
>>
Lorenz believes it's important for a doctor to be open minded and to have the same belief system as the patient.
Lorenz is a 50 year old Black Afro-Caribbean man who has been in the UK since 1966. He was diagnosed with schizophrenia aged 20 and this is now controlled by the anti-psychotic Aripiprazole (10mg daily) enabling Lorenz to work as a social care assistant.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Imani - Interview 26
>>
Imani's having Christian counselling with a "brilliant" counsellor and says although her ethnicity (white) doesn't matter, her spiritual beliefs do.
Imani, 48, describes herself as African-Caribbean, and was born in the UK. She was diagnosed with depression aged 47 having survived an abusive marriage. Imani is feeling better now she is taking antidepressants and having Christian counselling.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Imani - Interview 26
>>
Imani compares two different counsellors and says one seemed to be afraid of her.
Imani, 48, describes herself as African-Caribbean, and was born in the UK. She was diagnosed with depression aged 47 having survived an abusive marriage. Imani is feeling better now she is taking antidepressants and having Christian counselling.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Nelsy - Interview 21
>>
Nelsy had suicidal thoughts when her counselling sessions ended too soon.
Nelsy, 56, was born in Colombia and has been in the UK for 19 years. Nelsy experienced a nervous breakdown. She believes that illnesses are caused by accumulated anger and "fear of the social pressures for an impossible social equality".
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 20 - 29
>>
Ali - Interview 33
>>
Ali tried talking therapy and although he felt better he found it boring and wanted something that worked faster. (Played by an actor).
Ali, 27, was born in Pakistan and has been studying and working in the UK. Ali says that although it's easier to explain things to professionals from the same culture, as long as the other person is understanding, you can always clarify things.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Jay - Interview 27
>>
Jay had a counsellor who she thought was "rubbish" and another who was "excellent"; she also did some introductory counselling training.
Jay, 42, describes herself as Black-British. She was diagnosed with schizoaffective disorder aged 34 and now works in mental health. Jay's voices say mainly negative things, but two voices encourage her and give her tenacity and drive.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Sara - Interview 32
>>
Sara finds middle class white professionals difficult to relate to. (Played by an actor).
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Sara - Interview 32
>>
Sara suggests that professionals listen, not make assumptions, and realise that people with mental health problems have "the same dreams and desires a
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 20 - 29
>>
Tariq - Interview 06
>>
Tariq thought it would be helpful if professionals work more with families, and provide information in layman's language and contact details for organ
This 21 year old Asian student was diagnosed with manic depression and then schizophrenia. He disagrees that the mental health system is institutionally racist, saying that he encountered discrimination due to his mental health not his ethnicity.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Niabingi - Interview 01
>>
Niabingi says there should be more funding for Black health organisations, more consultation and more research. (Played by an actor).
This 42 year old Black, British born woman was diagnosed at the age of 25 with paranoid schizophrenia but disagrees with the paranoid part. She believes that her mental distress was caused by the racism she experienced when growing up.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Judy - Interview 05
>>
Judy says be honest with your doctors and you'll get help.
This Black-Caribbean woman was diagnosed with manic depressive psychosis in Jamaica. She says she has not been back to hospital for 6 years because she hasn't stopped taking her medication, even though it makes her extremely drowsy.
Mental health
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Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Lorenz - Interview 11
>>
Lorenz looked at his medical notes - although his wife had to give her permission - and says the information was correct because he sent letters to hi
Lorenz is a 50 year old Black Afro-Caribbean man who has been in the UK since 1966. He was diagnosed with schizophrenia aged 20 and this is now controlled by the anti-psychotic Aripiprazole (10mg daily) enabling Lorenz to work as a social care assistant.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Lorenz - Interview 11
>>
Writing helps Lorenz express his feelings.
Lorenz is a 50 year old Black Afro-Caribbean man who has been in the UK since 1966. He was diagnosed with schizophrenia aged 20 and this is now controlled by the anti-psychotic Aripiprazole (10mg daily) enabling Lorenz to work as a social care assistant.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Sarah - Interview 28
>>
She says it's difficult to communicate with her GP without her children to interpret for her. (Original interview in Cantonese, text in English).
Sarah, a married mother of 4, is Chinese and came to the UK from Hong Kong when she got married. She was diagnosed with depression when she was 46. Sarah gets a lot of comfort from her religion - she says she would feel very depressed without it.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Lorenz - Interview 11
>>
He says he was open with his wife from the start of their relationship; he told his psychiatrist that if his wife became concerned about him they shou
Lorenz is a 50 year old Black Afro-Caribbean man who has been in the UK since 1966. He was diagnosed with schizophrenia aged 20 and this is now controlled by the anti-psychotic Aripiprazole (10mg daily) enabling Lorenz to work as a social care assistant.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Lorenz - Interview 11
>>
Lorenz suggests that the history of slavery has been passed down through genes and led Black people to experience mental health problems.
Lorenz is a 50 year old Black Afro-Caribbean man who has been in the UK since 1966. He was diagnosed with schizophrenia aged 20 and this is now controlled by the anti-psychotic Aripiprazole (10mg daily) enabling Lorenz to work as a social care assistant.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Raj - Interview 19
>>
Raj was unable to work following a heart attack and says this made him depressed. (Audio in Punjabi, text in English).
Raj, 55, describes himself as British-Indian. He was born in India and came to the UK aged 13. He developed depression following a heart attack but says it took the doctor a long time to diagnose it. Raj's wife helps care for him.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Reena - Interview 07
>>
Reena says work helped her "to keep my mind fresh". (Audio in Bengali, text in English).
Reena, 42, describes herself as Bangladeshi, and came to the UK aged 9. She was diagnosed with depression in her early 30s.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Niabingi - Interview 01
>>
Niabingi read books to find out more about her diagnosis and discovered Black psychiatry; she says she now seeks a Black opinion because she can ident
This 42 year old Black, British born woman was diagnosed at the age of 25 with paranoid schizophrenia but disagrees with the paranoid part. She believes that her mental distress was caused by the racism she experienced when growing up.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Reena - Interview 07
>>
Reena feels her family "abandoned" her when she became unwell. (Audio in Bengali, text in English).
Reena, 42, describes herself as Bangladeshi, and came to the UK aged 9. She was diagnosed with depression in her early 30s.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Sara - Interview 32
>>
Sara describes the "horrible" attitude of staff when she was in hospital. (Played by an actor).
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Sara - Interview 32
>>
Sara says the staff were from different ethnic and cultural backgrounds and had a different attitude to people with mental health problems. (Played by
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Michael - Interview 31
>>
Michael says staff were unable to speak English very well and that there was a "cultural gap" between staff and patients.
Michael, 49, describes himself as a European Ashkenazi Jew. He has been given a variety of diagnoses, including bipolar affective disorder, personality disorder, paranoid schizophrenia, learning disability, and severe mental impairment.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Reena - Interview 07
>>
Reena went to one hospital that was so awful it would make you unwell and she made a complaint about it. (Audio in Bengali, text in English).
Reena, 42, describes herself as Bangladeshi, and came to the UK aged 9. She was diagnosed with depression in her early 30s.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 60 - 69
>>
Anton - Interview 13
>>
Anton wanted to go to hospital until he discovered what it was like inside.
Anton, 64, is an Asian man who came from Sri Lanka to the UK in 1962. He was diagnosed with bipolar disorder aged 45 and was given various medicines but none worked. Now he is not receiving any treatment: he was told by doctors they had "given up" on him.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Sara - Interview 32
>>
Sara felt being in hospital was like being in prison and felt like a punishment.
Sara, 34, describes herself as Indian and has a diagnosis of depression. Sara's food bingeing was interpreted as psychotic behaviour and she was diagnosed with schizophrenia. In her late twenties, however, a specialist diagnosed an eating disorder.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 30 - 39
>>
Dolly - Interview 14
>>
Dolly says she saw staff use more force and more medication for Black patients; she also says staff made assumptions about what language she speaks an
Dolly, a 36 year old writer and author of The World is Full of Laughter, is of mixed ethnicity (White/Asian), and first experienced psychosis aged 14. She finds Cognitive Behavioural Therapy, Buddhism and meditation very useful.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 40 - 49
>>
Jay - Interview 27
>>
Jay took the opportunity to be an informal patient when it was offered but was very upset when her suitcase was searched on arrival.
Jay, 42, describes herself as Black-British. She was diagnosed with schizoaffective disorder aged 34 and now works in mental health. Jay's voices say mainly negative things, but two voices encourage her and give her tenacity and drive.
Mental health
>>
Mental health: ethnic minority experiences
>>
Aged 50 - 59
>>
Judy - Interview 05
>>
Judy's keyworker recommended that she attended a group with other people from Black and minority ethnic backgrounds, even though it was further to tra
This Black-Caribbean woman was diagnosed with manic depressive psychosis in Jamaica. She says she has not been back to hospital for 6 years because she hasn't stopped taking her medication, even though it makes her extremely drowsy.
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