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Mental health
Mental health: ethnic minority carers’ experiences
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Becoming a carer :
Becoming a mental health carer
Reasons for caring and carers' qualities
How caring affects carers :
Working life and life opportunities
Relationship to the person cared for
Children, family and social life
Stress and carers' health
Negative attitudes to mental health problems
Looking after yourself and getting help :
Getting the balance right
Support from family, friends and community
Support from spirituality and religion
Support from carers' services
Carers' assessments
Caring for someone with a mental health problem :
Giving emotional and practical support
Taking control - difficult situations and medication
Carers' views: mental health problems & causes
Carers' views on treatment and cure
Carers' experiences with mental health services :
Services and minority ethnic communities
Carers' voice and confidentiality issues
Working with GPs and Psychiatric Consultants
Dealing with hospitals
Services in the community
What carers want :
What different cultures can teach us
Carers advice for support and information services
Carers' advice about carer policies
Final advice to other carers
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Mental health: ethnic minority carers’ experiences
Subject index
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Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Aiko - Interview 17
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Aiko was reluctant to take medication for her own depression.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila thinks it is unfair that carers absorb all the stress without enough support.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Kiran - Interview 26
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Kiran says things are easier now the children are grown up and he has learnt to live with his wife's condition (recording in Gujarati).
Kiran has been caring for his wife for seven years. She has a lot of health issues and it took over 20 years to find out that depression was an important part of her problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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Having other people talk about 'how to express emotion' may be insulting to carers.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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Jane grieves that her daughter will never have friendships, get married and have children (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She is sad she could not be with family members in India when they were dying.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Pooja - Interview 23
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Pooja's son decided to get a job instead of studying so he could help his parents.
Pooja has cared for her husband for 12 years. He suffers from depression and from other health issues and is very dependent on her.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Kiran - Interview 26
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When the children were young, Kiran worried about them and about money (recording in Gujarati).
Kiran has been caring for his wife for seven years. She has a lot of health issues and it took over 20 years to find out that depression was an important part of her problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye puts everything on hold when she worries about her father.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Anne - Interview 20
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Anne is grieving because she feels she's lost a husband.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Emily - Interview 19
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Emily describes some of the stress she went through when she first arrived in the UK and started caring.
Emily has been caing for her husband who suffers from Schizophrenia since she came to the UK three years ago. She says her relationship to God gives her peace and makes her able to cope with a difficult situation.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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She worries about who will care for her daughter when she and her husband are gone (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye has depression and an eating disorder, but feels luckier than her father, sister and brother.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Marcie - Interview 04
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She enjoys time off now, but felt guilty the first time her husband went into respite care.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
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