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Mental health
Mental health: ethnic minority carers’ experiences
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Becoming a carer :
Becoming a mental health carer
Reasons for caring and carers' qualities
How caring affects carers :
Working life and life opportunities
Relationship to the person cared for
Children, family and social life
Stress and carers' health
Negative attitudes to mental health problems
Looking after yourself and getting help :
Getting the balance right
Support from family, friends and community
Support from spirituality and religion
Support from carers' services
Carers' assessments
Caring for someone with a mental health problem :
Giving emotional and practical support
Taking control - difficult situations and medication
Carers' views: mental health problems & causes
Carers' views on treatment and cure
Carers' experiences with mental health services :
Services and minority ethnic communities
Carers' voice and confidentiality issues
Working with GPs and Psychiatric Consultants
Dealing with hospitals
Services in the community
What carers want :
What different cultures can teach us
Carers advice for support and information services
Carers' advice about carer policies
Final advice to other carers
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Mental health: ethnic minority carers’ experiences
Subject index
Topic
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
Carers advice for support and information services
>>
Carers advice for support and information services
Carers advice for support and information services
Clip
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Angela - Interview 15
>>
Angela says people in hospitals don't get the care, support and empathy which they need and which helped her brother to recover.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Ramanbhai - Interview 27
>>
Getting annoyed or angry didn't work and Ramanbhai now speaks to his wife in a gentle, comforting way.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Tina - Interview 18
>>
Tina says when people with mental health problems have wrong perceptions of what is happening, you need to deal with it sympathetically (played by an
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Angela - Interview 15
>>
Don't give up on the person you care for, try to understand them, but don't pamper them.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Ramila - Interview 13
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Ramila has learnt a lot from her brother and says we need to see the person behind the illness.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
>>
Tina - Interview 18
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Treat people with mental illness with sympathy and understanding (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Miriam - Interview 05
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When her son is unwell she visits several times a day to make sure he is OK.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
>>
Jane - Interview 22
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Jane says that people with a mental illness feel the same need to be loved as everyone else (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Tina - Interview 18
>>
Instead of offering friendliness and support, Tina says, people sometimes act as if mental health problems are contagious (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
Giving emotional and practical support
>>
Giving emotional and practical support
Giving emotional and practical support
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
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Anne - Interview 20
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Anne describes an exercise which helps her deal with her husband's irrational thinking.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
Although professional advice can be good, Anton sometimes finds his own ways of doing things.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Kiran - Interview 26
>>
Kiran help his wife to take part in activities (recording in Gujarati).
Kiran has been caring for his wife for seven years. She has a lot of health issues and it took over 20 years to find out that depression was an important part of her problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Nita - Interview 12
>>
Nita thinks carer's assessments need to be re-thought so that people don't have to jump 'hurdles' to get what they are entitled to.
Nita cares for her mother who is diagnosed with manic depression. She thinks it is essential that carers have their own needs met and that they get support to come to terms with the loss and hurt they may feel.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Emily - Interview 19
>>
Emily was happy with her carer's assessment which was supported by her local Afro-Caribbean Centre.
Emily has been caing for her husband who suffers from Schizophrenia since she came to the UK three years ago. She says her relationship to God gives her peace and makes her able to cope with a difficult situation.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Ramila - Interview 13
>>
Ramila felt obliged to have a carer's assessment in case it could help her brother, but the outcome was predictable.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Sarah - Interview 25
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Her first carer's assessment offered unsuitable respite, but the second assessment was better (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
She does not apply for things she is entitled to because she feels her honesty is doubted (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Nita - Interview 12
>>
Nita thinks carer's assessments need to be re-thought so that people don't have to jump 'hurdles' to get what they are entitled to.
Nita cares for her mother who is diagnosed with manic depression. She thinks it is essential that carers have their own needs met and that they get support to come to terms with the loss and hurt they may feel.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
She does not apply for things she is entitled to because she feels her honesty is doubted (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Sarah - Interview 25
>>
Her first carer's assessment offered unsuitable respite, but the second assessment was better (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Anne - Interview 20
>>
Her support worker suggested that Anne simply run a nice hot bath for her husband instead of 'nagging him' to have one.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
Although professional advice can be good, Anton sometimes finds his own ways of doing things.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
Jane says that people with a mental illness feel the same need to be loved as everyone else (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Emily - Interview 19
>>
Emily was happy with her carer's assessment which was supported by her local Afro-Caribbean Centre.
Emily has been caing for her husband who suffers from Schizophrenia since she came to the UK three years ago. She says her relationship to God gives her peace and makes her able to cope with a difficult situation.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Tina - Interview 18
>>
Instead of offering friendliness and support, Tina says, people sometimes act as if mental health problems are contagious (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Guo - Interview 14
>>
People fear violence and stay away when they hear Gou's sons have mental health problems.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Marcie - Interview 04
>>
Marcie grew up as a Catholic, but now finds that learning from philosophy helps more.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Sophie - Interview 09
>>
Sophie explains how coping with adversity is part of life, and spirituality or God can give support.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Anne - Interview 20
>>
Anne maintains her personal relationship to God and that helps her to cope.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Emily - Interview 19
>>
For Emily, becoming religious helped her to cope and gave her an understanding which helped her deal with practical issues.
Emily has been caing for her husband who suffers from Schizophrenia since she came to the UK three years ago. She says her relationship to God gives her peace and makes her able to cope with a difficult situation.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
The way Anton think about prayers has changed since he became a carer.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Ramanbhai - Interview 27
>>
He believes that while you may get support from religion, it is really your inner strength that matters.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
Jane's GP told them about a centre which had services both for her and her daughter. It was a good source of information (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Anne - Interview 20
>>
Her support worker from a local voluntary organisation is very flexible and gives her great support.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
Her community centre provides a space to talk and opportunities for lots of activities, which break the tension of everyday life (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Wei - Interview 31
>>
At the carers' group Wei meets other people and does things which takes her mind off her problems (recording in Chinese).
Wei has been caring for her husband since he got mental health problems more than 20 years ago.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Indira - Interview 08
>>
She is happy with the sitting service and grateful that the voluntary organisation can send the same person each time.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
She worries about who will care for her daughter when she and her husband are gone (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
Anton's siblings leave most of the care to him.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Guo - Interview 14
>>
The CPN helped when Gou's son had trouble with the police.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Pooja - Interview 23
>>
Much of their family 'shun away', and Pooja feels supported only by her mother.
Pooja has cared for her husband for 12 years. He suffers from depression and from other health issues and is very dependent on her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Angela - Interview 15
>>
Angela says people in hospitals don't get the care, support and empathy which they need and which helped her brother to recover.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Indira - Interview 08
>>
She says home carers need more training.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Sarah - Interview 25
>>
If the person who is unwell doesn't want to go to the doctor, talk to your own doctor or ask for a home visit and contact mental health organisations
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Ramanbhai - Interview 27
>>
Ramanbhai relies on his inner strength and doesn't talk to others.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Amar - Interview 01
>>
Amar says people with mental health problems are not told of their rights to have assessments and care plans.
Amar's mother got a schizophrenic disorder around the time the family moved from Kenya via India to England. Over forty years later, Amar is her mother's main carer, on top of a full time job and being a parent.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
The home carers are helpful, but he monitors their work and has complained when things are not done properly.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Indira - Interview 08
>>
When the home carers left their aunt in her own waste, Indira and her cousin believed it was a criminal assault.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
Anton says that home carers' jobs can be unpleasant and they have poor pay and working conditions.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Ramila - Interview 13
>>
Ramila thinks it is unfair that carers absorb all the stress without enough support.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
If you are not satisfied with the home carer service, complaining can make a difference.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Aiko - Interview 17
>>
Doing voluntary work rather than other activities means Aiko can use her job skills.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Indira - Interview 08
>>
She finds some of the home carers very rude to her aunt.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Wei - Interview 31
>>
More help is available now, but when her husband first became unwell it was hard to get interpreters (recording in Chinese).
Wei has been caring for her husband since he got mental health problems more than 20 years ago.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Angela - Interview 15
>>
Living in a polygamous family created tension rather than support.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
>>
Jane had been a carer for many years before her doctor told her about a centre which had services both for her and her daughter (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Ramila - Interview 13
>>
Ramila says carers have an understanding and hope that professionals don't necessarily have.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Ramila - Interview 13
>>
Ramila thinks carers sometimes put up with 'being blamed' because they feel so responsible.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Anton - Interview16
>>
Anton feels supported in the Sri Lankan church.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Agnes - Interview 29
>>
Agnes did not think her daughter's key worker was fair when filling in a housing application.
Agnes has been caring for her daughter, who has OCD (obsessive compulsive disorder) and depression, for four years.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Aiko - Interview 17
>>
Aiko was helped by a support worker and searched the internet to understand what 'carer' meant.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Guo - Interview 14
>>
When Guo approached his MP it was helpful to have the backing of his carer's organisation.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Aiko - Interview 17
>>
Others may not understand that she can't take breaks if it puts her husband at risk.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Sophie - Interview 09
>>
Sophie has not looked for support because in her culture you are supposed to be strong yourself.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Pooja - Interview 23
>>
Pooja gets great support from her son who lives with them, but less from her married daughters.
Pooja has cared for her husband for 12 years. He suffers from depression and from other health issues and is very dependent on her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Raye - Interview 30
>>
When she returned after two years abroad, her brother hadn't taken on much of the care for their father, their older sister and brother.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Anne - Interview 20
>>
Anne's friends don't really understand, and she chooses who she talks to, but communicates with God.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Sarah - Interview 25
>>
Other carers understand her son's condition in a way her non-carer friends don't (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
>>
Elaine - Interview 32
>>
She was the sole carer but her aunt called from the USA to support her father (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Kiran - Interview 26
>>
Their neighbour is great company for his wife and has been there for them when crisis hit (recording in Gujarati).
Kiran has been caring for his wife for seven years. She has a lot of health issues and it took over 20 years to find out that depression was an important part of her problems.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Pooja - Interview 23
>>
She says 'Punjabi people don't know what depression is' so they don't want to tell the community about her husband's situation.
Pooja has cared for her husband for 12 years. He suffers from depression and from other health issues and is very dependent on her.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Kiran - Interview 26
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Kiran help his wife to take part in activities (recording in Gujarati).
Kiran has been caring for his wife for seven years. She has a lot of health issues and it took over 20 years to find out that depression was an important part of her problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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It makes sense to do a joint weekly shop for herself and her brother, but Ramila feels uncomfortable about not keeping his money separate from hers.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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It makes sense to do a joint weekly shop for herself and her brother, but Ramila feels uncomfortable about not keeping his money separate from hers.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
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Jane - Interview 22
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Jane wants her daughter to become independent so she can cope when her parents are no longer there.
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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Jane wants her daughter to become independent so she can cope when her parents are no longer there.
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Leah - Interview 28
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Leah has started to tell her son how to do things instead of doing them for him, but she still rings to check (recording in Chinese).
Leah has been caring for her son Albert with schizophrenia for 17 years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Leah - Interview 28
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Leah has started to tell her son how to do things instead of doing them for him, but she still rings to check (recording in Chinese).
Leah has been caring for her son Albert with schizophrenia for 17 years.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
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Indira - Interview 08
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She says you need to look after yourself first to look after others.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Marcie - Interview 04
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Marcie makes plans to meet friends while others look after her husband.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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It can be difficult to find someone to talk to but her colleague provided a safe place to talk and cry when she needed it.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
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Sarah - Interview 25
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Sarah's daughters gives practical help, and their strong relationships are a source of strength and emotional support (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Ramanbhai - Interview 27
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Ranambhai's daughter gives practical and emotional support to his wife, including discussing 'women's things' with her.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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She feels she wears out her few friends here, whereas communities back home might be more supportive.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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She thinks most support comes from the home, but more openness can help communities provide better support (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
>>
Ramanbhai - Interview 27
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Ramanbhai doesn't need any services himself, but his wife benefits from the local South Asian support centre.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Amar - Interview 01
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Amar thinks statutory services need to be easier to access in a crisis.
Amar's mother got a schizophrenic disorder around the time the family moved from Kenya via India to England. Over forty years later, Amar is her mother's main carer, on top of a full time job and being a parent.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila felt obliged to have a carer's assessment in case it could help her brother, but the outcome was predictable.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Marcie - Interview 04
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She enjoys time off now, but felt guilty the first time her husband went into respite care.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Marcie - Interview 04
>>
She enjoys time off now, but felt guilty the first time her husband went into respite care.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Nick - Interview 02
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When carers get together they support and learn from each other.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Agnes - Interview 29
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Because her English is limited, a Chinese organisation gives Agnes the best support.
Agnes has been caring for her daughter, who has OCD (obsessive compulsive disorder) and depression, for four years.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Tina - Interview 18
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Tina says when people with mental health problems have wrong perceptions of what is happening, you need to deal with it sympathetically (played by an
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Sarah - Interview 25
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Sarah's son has little initiative so she organises trips to stimulate him (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Sarah - Interview 25
>>
Sarah's son has little initiative so she organises trips to stimulate him (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Miriam - Interview 05
>>
When her son is unwell she visits several times a day to make sure he is OK.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Anne - Interview 20
>>
Anne describes an exercise which helps her deal with her husband's irrational thinking.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Ramanbhai - Interview 27
>>
Getting annoyed or angry didn't work and Ramanbhai now speaks to his wife in a gentle, comforting way.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Nick - Interview 02
>>
Just as doctors need education to treat a broken leg, carers need education and support to look after people with mental health problems.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
Support from carers' services
>>
Support from carers' services
Support from carers' services
Mental health
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Mental health: ethnic minority carers’ experiences
>>
Support from family, friends and community
>>
Support from family, friends and community
Support from family, friends and community
Mental health
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Mental health: ethnic minority carers’ experiences
>>
Support from spirituality and religion
>>
Support from spirituality and religion
Spirituality and religion
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
>>
Anne - Interview 20
>>
Her support worker from a local voluntary organisation is very flexible and gives her great support.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
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