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Mental health
Mental health: ethnic minority carers’ experiences
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Becoming a carer :
Becoming a mental health carer
Reasons for caring and carers' qualities
How caring affects carers :
Working life and life opportunities
Relationship to the person cared for
Children, family and social life
Stress and carers' health
Negative attitudes to mental health problems
Looking after yourself and getting help :
Getting the balance right
Support from family, friends and community
Support from spirituality and religion
Support from carers' services
Carers' assessments
Caring for someone with a mental health problem :
Giving emotional and practical support
Taking control - difficult situations and medication
Carers' views: mental health problems & causes
Carers' views on treatment and cure
Carers' experiences with mental health services :
Services and minority ethnic communities
Carers' voice and confidentiality issues
Working with GPs and Psychiatric Consultants
Dealing with hospitals
Services in the community
What carers want :
What different cultures can teach us
Carers advice for support and information services
Carers' advice about carer policies
Final advice to other carers
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Mental health: ethnic minority carers’ experiences
Subject index
Clip
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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The doctors did not tell Nick about the tests that should have been done on his son or the possibility of getting a second opinion.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Nita - Interview 12
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She says the NHS needs to take more responsibility and not expect voluntary organisations to do work it should be doing.
Nita cares for her mother who is diagnosed with manic depression. She thinks it is essential that carers have their own needs met and that they get support to come to terms with the loss and hurt they may feel.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Anne - Interview 20
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Anne says it can be very difficult to get psychiatric help in an emergency.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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Nick lost confidence when he was told that his son's symptoms were the result of his parenting.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Leah - Interview 28
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Leah was told to ring the police because no one was there to give her son his injection (recording in Chinese).
Leah has been caring for her son Albert with schizophrenia for 17 years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She finds some of the home carers very rude to her aunt.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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When the home carers left their aunt in her own waste, Indira and her cousin believed it was a criminal assault.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Amar - Interview 01
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Amar says people with mental health problems are not told of their rights to have assessments and care plans.
Amar's mother got a schizophrenic disorder around the time the family moved from Kenya via India to England. Over forty years later, Amar is her mother's main carer, on top of a full time job and being a parent.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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Elaine talks about how she felt when the social services wanted to section her father (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Agnes - Interview 29
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Agnes did not think her daughter's key worker was fair when filling in a housing application.
Agnes has been caring for her daughter, who has OCD (obsessive compulsive disorder) and depression, for four years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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When living in a supervised home, Nick's son managed to avoid taking his medicine and relapsed.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila says 'you just know' racism is there, even if it is difficult to explain.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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He says GPs should know more about how to pick up on mental health problems.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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She thinks her father would have died in hospital had she not intervened using her skills as a nurse (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Agnes - Interview 29
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After Agnes's daughter had attempted suicide, housing suddenly became available.
Agnes has been caring for her daughter, who has OCD (obsessive compulsive disorder) and depression, for four years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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Initially, Nick got little information from the CPN.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Leah - Interview 28
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Leah is happy with her son's consultant and trusts her (recording in Chinese).
Leah has been caring for her son Albert with schizophrenia for 17 years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Leah - Interview 28
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Her son complains about the nurses, but she is grateful to the medical staff (recording in Chinese).
Leah has been caring for her son Albert with schizophrenia for 17 years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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Nick's son has had little psychotherapy; and he thinks there is a dearth of psychotherapy in mental health care.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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The home carers are helpful, but he monitors their work and has complained when things are not done properly.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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Anton says that home carers' jobs can be unpleasant and they have poor pay and working conditions.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye thinks there is racism in mental health services and in society generally.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Sarah - Interview 25
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Sarah wishes the psychiatrist would be more involved in her son's case (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye says her sister, like many other people from minority ethnic communities, has become institutionalised.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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Sophie says we all notice race, but the problem comes when workers make decisions based on stereotypes.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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Over the years he has developed a good relationship with his GP.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She says home carers need more training.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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If you are not satisfied with the home carer service, complaining can make a difference.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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Sophie discovered that her sister was on a very large 'cocktail of drugs' and wonders who is responsible.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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Over the years he has developed a good relationship with his GP.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
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Guo - Interview 14
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The CPN helped when Gou's son had trouble with the police.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Angela - Interview 15
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Angela thinks people with mental health problems need a firm hand and spiritual care.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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Having been attacked herself, Elaine worried about her father when he was in hospital (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila thinks people with mental health problems should be given the privacy of their own room.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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Elaine's father was sectioned and moved from the general ward to the psychiatric ward against her will (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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The psychiatric ward could not provide all the treatment her father needed and did not have notes about his physical condition (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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She felt staff had given up on her father and so she intervened (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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Sophie worries that her sister is taken advantage of in the residential care home.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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Tina says the ability housing officers are not giving her clients the support they are paid for (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Amar - Interview 01
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Amar thinks statutory services need to be easier to access in a crisis.
Amar's mother got a schizophrenic disorder around the time the family moved from Kenya via India to England. Over forty years later, Amar is her mother's main carer, on top of a full time job and being a parent.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Knowing their limitations and regulations doesn't stop Ramila sometimes feeling angry with services.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Marcie - Interview 04
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She enjoys time off now, but felt guilty the first time her husband went into respite care.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
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