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Mental health
Mental health: ethnic minority carers’ experiences
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Becoming a carer :
Becoming a mental health carer
Reasons for caring and carers' qualities
How caring affects carers :
Working life and life opportunities
Relationship to the person cared for
Children, family and social life
Stress and carers' health
Negative attitudes to mental health problems
Looking after yourself and getting help :
Getting the balance right
Support from family, friends and community
Support from spirituality and religion
Support from carers' services
Carers' assessments
Caring for someone with a mental health problem :
Giving emotional and practical support
Taking control - difficult situations and medication
Carers' views: mental health problems & causes
Carers' views on treatment and cure
Carers' experiences with mental health services :
Services and minority ethnic communities
Carers' voice and confidentiality issues
Working with GPs and Psychiatric Consultants
Dealing with hospitals
Services in the community
What carers want :
What different cultures can teach us
Carers advice for support and information services
Carers' advice about carer policies
Final advice to other carers
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Mental health: ethnic minority carers’ experiences
Subject index
Clip
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Aiko - Interview 17
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Aiko was reluctant to take medication for her own depression.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila thinks it is unfair that carers absorb all the stress without enough support.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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Having other people talk about 'how to express emotion' may be insulting to carers.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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Jane grieves that her daughter will never have friendships, get married and have children (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She is sad she could not be with family members in India when they were dying.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye puts everything on hold when she worries about her father.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Anne - Interview 20
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Anne is grieving because she feels she's lost a husband.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Emily - Interview 19
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Emily describes some of the stress she went through when she first arrived in the UK and started caring.
Emily has been caing for her husband who suffers from Schizophrenia since she came to the UK three years ago. She says her relationship to God gives her peace and makes her able to cope with a difficult situation.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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She worries about who will care for her daughter when she and her husband are gone (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Angela - Interview 15
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Angela says people in hospitals don't get the care, support and empathy which they need and which helped her brother to recover.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye has depression and an eating disorder, but feels luckier than her father, sister and brother.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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Jane says that people with a mental illness feel the same need to be loved as everyone else (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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Instead of offering friendliness and support, Tina says, people sometimes act as if mental health problems are contagious (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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Instead of offering friendliness and support, Tina says, people sometimes act as if mental health problems are contagious (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
>>
Jane - Interview 22
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Jane says that people with a mental illness feel the same need to be loved as everyone else (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Angela - Interview 15
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Don't give up on the person you care for, try to understand them, but don't pamper them.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila has learnt a lot from her brother and says we need to see the person behind the illness.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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Treat people with mental illness with sympathy and understanding (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a sister or brother
>>
Angela - Interview 15
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Angela says people in hospitals don't get the care, support and empathy which they need and which helped her brother to recover.
Angela cared for her brother with mental health problems for much of her adult life. Once her brother was cured, she was finally able to get married and have a family, the absence of which had been as source of great pain for her.
Mental health
>>
Mental health: ethnic minority carers’ experiences
>>
People caring for their husband, wife or partner
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Ramanbhai - Interview 27
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Getting annoyed or angry didn't work and Ramanbhai now speaks to his wife in a gentle, comforting way.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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Tina says when people with mental health problems have wrong perceptions of what is happening, you need to deal with it sympathetically (played by an
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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When her son is unwell she visits several times a day to make sure he is OK.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Topic
Mental health
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Mental health: ethnic minority carers’ experiences
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Giving emotional and practical support
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Giving emotional and practical support
Giving emotional and practical support
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