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Mental health
Mental health: ethnic minority carers’ experiences
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Becoming a carer :
Becoming a mental health carer
Reasons for caring and carers' qualities
How caring affects carers :
Working life and life opportunities
Relationship to the person cared for
Children, family and social life
Stress and carers' health
Negative attitudes to mental health problems
Looking after yourself and getting help :
Getting the balance right
Support from family, friends and community
Support from spirituality and religion
Support from carers' services
Carers' assessments
Caring for someone with a mental health problem :
Giving emotional and practical support
Taking control - difficult situations and medication
Carers' views: mental health problems & causes
Carers' views on treatment and cure
Carers' experiences with mental health services :
Services and minority ethnic communities
Carers' voice and confidentiality issues
Working with GPs and Psychiatric Consultants
Dealing with hospitals
Services in the community
What carers want :
What different cultures can teach us
Carers advice for support and information services
Carers' advice about carer policies
Final advice to other carers
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Mental health: ethnic minority carers’ experiences
Subject index
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Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Sarah - Interview 25
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Other carers understand her son's condition in a way her non-carer friends don't (played by an actor).
Sarah cares for her son who has shcizophrenia. She is active in several carer's oganisations.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Ramanbhai - Interview 27
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Ramambhai feels that leaving his wife with others would have a negative effect on her so he mostly stays at home.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Topic
Mental health
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Mental health: ethnic minority carers’ experiences
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Carers advice for support and information services
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Carers advice for support and information services
Carers advice for support and information services
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Carers' health can suffer, so carers must get support, find time to do things for themselves and learn to let go of some responsibilities.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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Carers' advice about carer policies
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Carers' advice about carer policies
Carers' advice about carer policies
Mental health
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Mental health: ethnic minority carers’ experiences
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Carers' assessments
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Carers' assessments
Carers' assessments
Mental health
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Mental health: ethnic minority carers’ experiences
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Carers' views on treatment and cure
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Carers' views on treatment and cure
Carers' views on treatment and cure
Mental health
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Mental health: ethnic minority carers’ experiences
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Carers' views: mental health problems & causes
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Carers' views: mental health problems & causes
Carers' view of mental health problems and its causes
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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Just as doctors need education to treat a broken leg, carers need education and support to look after people with mental health problems.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Amar - Interview 01
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She thinks mental health issues should be part of the school curriculum.
Amar's mother got a schizophrenic disorder around the time the family moved from Kenya via India to England. Over forty years later, Amar is her mother's main carer, on top of a full time job and being a parent.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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Anton thinks the current carer's allowance is inadequate considering what they do.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Nita - Interview 12
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She says the NHS needs to take more responsibility and not expect voluntary organisations to do work it should be doing.
Nita cares for her mother who is diagnosed with manic depression. She thinks it is essential that carers have their own needs met and that they get support to come to terms with the loss and hurt they may feel.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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She thinks it would be helpful to have someone to mediate when there is conflict between carers and service personnel (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Ramanbhai - Interview 27
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Ramanbhai comes along to his wife's consultations and they meet the psychiatrist together after she has been seen on her own.
Ramanbhai is a full time carer for his wife who suffers from depression. It took many years before she diagnosed, and she has other health issues as well.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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Jane thinks carers today are speaking up and being listened to more than before (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Aiko - Interview 17
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Patient confidentiality needs to be explained to people who are new to the UK and patients should be able to decide to have carers with them.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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She says the hospital wanted her to sign sectioning papers while 'bluffing' about what was actually going on, and not helping her with English transla
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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Elaine felt the psychiatrist questioned her mental health because she was a 'difficult relative' (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Agnes - Interview 29
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Agnes was told she had to leave the hospital for her daughter's test, but was not told why.
Agnes has been caring for her daughter, who has OCD (obsessive compulsive disorder) and depression, for four years.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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She thinks her father would have died in hospital had she not intervened using her skills as a nurse (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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A friendly doctor took time to talk properly to Miriam and her son.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Jane - Interview 22
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Really careful listening is needed to understand the work carers do (played by an actor).
For the last 20 years Jane and her husband has cared for their daughter Sarah, who has schizophrenia. She worries about what will happen to their daughter when they are not around anymore.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye describes how caring for someone with a mental health problem requires time and expertise, and doesn't fit well with the 9-5 professional schedul
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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Miriam wants carers and health professionals to have regular contact from day one.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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If you feel something isn't right, speak out about it. Ask questions, make notes and contact other carers that are going through the same things.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Anne - Interview 20
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She thinks the way staff listen to carers should be part of routine monitoring of their work.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila says carers have an understanding and hope that professionals don't necessarily have.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila thinks carers sometimes put up with 'being blamed' because they feel so responsible.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Guo - Interview 14
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When Guo approached his MP it was helpful to have the backing of his carer's organisation.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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Over the years he has developed a good relationship with his GP.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Marcie - Interview 04
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She thinks every carer should get respite that suits their needs.
10 years ago Marcie's husband Larry was diagnosed with Alzheimer's disease. Today he is completely depended on her and Marcie gave up her job as a Ward Clark to look after him. Most of Marcie's time is taken up with caring for him, which is restricting and isolating.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Emily - Interview 19
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Emily doesn't want to be away from her family for long periods, so takes short breaks at the community centre.
Emily has been caing for her husband who suffers from Schizophrenia since she came to the UK three years ago. She says her relationship to God gives her peace and makes her able to cope with a difficult situation.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Pooja - Interview 23
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The lack of suitable transport services makes it hard for her husband to attend community centres.
Pooja has cared for her husband for 12 years. He suffers from depression and from other health issues and is very dependent on her.
Mental health
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Mental health: ethnic minority carers’ experiences
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Carers' voice and confidentiality issues
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Carers' voice and confidentiality issues
Carers' voice and confidentiality issues
Mental health
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Mental health: ethnic minority carers’ experiences
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Final advice to other carers
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Final advice to other carers
Final advice to other carers
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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The home carers are helpful, but he monitors their work and has complained when things are not done properly.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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When the home carers left their aunt in her own waste, Indira and her cousin believed it was a criminal assault.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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Anton says that home carers' jobs can be unpleasant and they have poor pay and working conditions.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She says home carers need more training.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She finds some of the home carers very rude to her aunt.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She says professional home carers make remarks because she is Asian and Muslim.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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Reasons for caring and carers' qualities
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Reasons for caring and carers' qualities
Reasons for caring and carers' qualities
Mental health
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Mental health: ethnic minority carers’ experiences
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Stress and carers' health
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Stress and carers' health
Stress and carers' health
Mental health
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Mental health: ethnic minority carers’ experiences
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Support from carers' services
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Support from carers' services
Support from carers' services
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