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Mental health
Mental health: ethnic minority carers’ experiences
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Becoming a carer :
Becoming a mental health carer
Reasons for caring and carers' qualities
How caring affects carers :
Working life and life opportunities
Relationship to the person cared for
Children, family and social life
Stress and carers' health
Negative attitudes to mental health problems
Looking after yourself and getting help :
Getting the balance right
Support from family, friends and community
Support from spirituality and religion
Support from carers' services
Carers' assessments
Caring for someone with a mental health problem :
Giving emotional and practical support
Taking control - difficult situations and medication
Carers' views: mental health problems & causes
Carers' views on treatment and cure
Carers' experiences with mental health services :
Services and minority ethnic communities
Carers' voice and confidentiality issues
Working with GPs and Psychiatric Consultants
Dealing with hospitals
Services in the community
What carers want :
What different cultures can teach us
Carers advice for support and information services
Carers' advice about carer policies
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Mental health: ethnic minority carers’ experiences
Subject index
Clip
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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She thinks medicine should sometimes be hidden in drinks to help people get better (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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A friendly doctor took time to talk properly to Miriam and her son.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Guo - Interview 14
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In the USA Gou could go to weekly meetings at the hospital and talk to health professionals about his son.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Aiko - Interview 17
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Aiko says that in Japanese culture you put yourself aside to care for those who are vulnerable.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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He raises the question of whether a person's recovery or human rights should be the priority.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Wei - Interview 31
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More help is available now, but when her husband first became unwell it was hard to get interpreters (recording in Chinese).
Wei has been caring for her husband since he got mental health problems more than 20 years ago.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Tina - Interview 18
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Tina says the meals in hospitals don't suit a Hindu diet (played by an actor).
Tina cares for her son who suffers from mental health problems and she is also working as a carer for people with mental health problems at an Asian community centre.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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White British professional carers don't look after her sister's hair and skin properly.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Nita - Interview 12
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Nita says voluntary services are best at meeting individual needs, but funding is an issue.
Nita cares for her mother who is diagnosed with manic depression. She thinks it is essential that carers have their own needs met and that they get support to come to terms with the loss and hurt they may feel.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Aiko - Interview 17
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Aiko thinks services should be more open minded and listen to people from different cultures.
Aiko has been caring for her husband who suffers from complex post traumatic stress syndrome, bi-polar disorder and severe depression for seven years. She believes mental health services should address the needs of the whole family.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Elaine - Interview 32
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Elaine talks about how she felt when the social services wanted to section her father (played by an actor).
Elaine was the main carer for her father for the last four years of his life. He suffered from vascular dementia and Elaine feels both he as a patient and she as a carer were let down by the system.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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Nick lost confidence when he was told that his son's symptoms were the result of his parenting.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila says 'you just know' racism is there, even if it is difficult to explain.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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Sophie says we all notice race, but the problem comes when workers make decisions based on stereotypes.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Guo - Interview 14
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Gou has been called racist names and told to 'go home' many times, but he avoids confrontation.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Raye - Interview 30
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Raye thinks there is racism in mental health services and in society generally.
Raye grew up with mental health problems in the family. Today, she is the main carer for her father (paranoid schizophrenia), her sister (schizophrenia) and her brother (manic depression). She now feels she needs to let go of some of the responsibilities and focus on her own life.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Guo - Interview 14
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He thinks the police in the USA are better at helping families affected by mental health problems.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Anton - Interview16
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His white British friends advised Anton to put his mother in a care home.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for other or more than one relative
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Indira - Interview 08
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She says professional home carers make remarks because she is Asian and Muslim.
Indira has been caring for her aunt who has Alzheimer's disease for five years. She believes older people deserve to be treated with respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Sophie - Interview 09
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Sophie has not looked for support because in her culture you are supposed to be strong yourself.
Sophie has always had a caring role for her sister Angel. Angel is diognosed with Schizophrenia, but Sophie thinks this diagnosis is based on behaviour resulting from inappropriate medication of a mental disability and behavioral problems.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a son or daughter
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Nick - Interview 02
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Nick describes how the stigma of mental health problems affects families and communities.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Some languages need better words for mental health problems but even in languages that have better words, people use unhelpful terms.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Nita - Interview 12
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Nita felt ashamed before she learnt about mental health problems and says awareness needs to be raised.
Nita cares for her mother who is diagnosed with manic depression. She thinks it is essential that carers have their own needs met and that they get support to come to terms with the loss and hurt they may feel.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Miriam - Interview 05
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Her family 'back home' blames her for bringing her son to England where he became unwell.
Miriam carers for her son who is in his late twenties. He has been diagnosed with schizophrenia but she thinks what he has is drugs infused psychosis.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a sister or brother
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Ramila - Interview 13
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Ramila explains how some people from Indian cultures believe in curses.
Ramila has been caring for her brother who is diagnosed with schizophrenia for ten years. She thinks carers and service users deserve to be treated with more respect.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Anne - Interview 20
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Anne talks about how the Bible comforts her when people say mental and emotional problems are a result of sin.
Anne has been caring for her husband, who has severe depression, over the last four years. She has recently returned to part time work after having been a full time carer for some time. She believes it should be a requirement that health professionals listen to carers.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a son or daughter
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Nick - Interview 02
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Nick sometimes says his son has depression because it is more accepted than schizophrenia.
Nick and his wife have cared for their son with paranoid schizophrenia for almost 12 years. In the beginning Nick didn't feel heard by health professionals, but today he is a very involved.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for a parent
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Amar - Interview 01
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Amar thinks the fast pace of Western life means we lose touch with the natural world and family values.
Amar's mother got a schizophrenic disorder around the time the family moved from Kenya via India to England. Over forty years later, Amar is her mother's main carer, on top of a full time job and being a parent.
Mental health
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Mental health: ethnic minority carers’ experiences
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People caring for their husband, wife or partner
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Wei - Interview 31
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Wei does not want her husband to go to hospital because it is part of her culture to care for him herself (recording in Chinese).
Wei has been caring for her husband since he got mental health problems more than 20 years ago.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for a parent
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Anton - Interview16
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In some African societies, families can personally care for loved ones in hospital.
Anton cares for his 84 year old mother who suffers from dementia. His caring responsibilities together with his own health problems meant he had to take early retirement, but he is very involved in voluntary work.
Mental health
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Mental health: ethnic minority carers’ experiences
>>
People caring for other or more than one relative
>>
Guo - Interview 14
>>
In the USA Gou could go to weekly meetings at the hospital and talk to health professionals about his son's care.
Guo has been caring for two sons with bi-polar disorder for over twenty years. He doesn't think the current services meet the needs of people with mental health problems.
Topic
Mental health
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Mental health: ethnic minority carers’ experiences
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What different cultures can teach us
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What different cultures can teach us
What different cultures can teach us
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