Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

Subject index

Publication date: May 2011 Updated: January 2012

Review date: Under review

Well-designed clinical trials make a vital contribution to advancing medical knowledge, and so improve treatment, care and quality of life for all, including children. Because children are different from adults developmentally and physiologically, clinical trials in children are essential to ensure they receive appropriate, safe and effective treatments and care.

When parents are asked to enrol their children in a clinical trial it is important they understand what is involved and can make informed choices – together with their children, if they are old enough. In this healthtalkonline module 29 parents and 3 health professionals share their experiences of children being invited to take part in clinical trials.

Select from the key topics below or choose from the 'Full list of topics' on the left hand side to explore all the topics covered.

Alison became involved with clinical trials when her son was six years old, he is now 22. Alison talks about consenting on behalf of her son to supporting her son in making his own decisions and the reasons for taking part in clinical trials.

Medical research >> Clinical trials: Parents’ experiences >> Long term health conditions >> Kathryn - Interview 29 >> Kathryn wanted to enrol her daughter in a trial to try and make things better for her, but also she hopes that by taking part it will help other young

Kathryn gave consent to her daughter to take part in a clinical trial when attending a routine clinic visit. The trial was a randomised trial on the way information is given to young people with diabetes.

Medical research >> Clinical trials: Parents’ experiences >> Growth hormone trials >> Alison - Interview 14 >> Alison felt that offering a payment may change people’s attitude to taking part in trials, but if it is a long term commitment and involves ongoing tr

Alison talks about her experiences of three different clinical trials since the birth of her son. Two whilst in the neonatal unit of which one she was not eligible. The third trial involved her son receiving Growth Hormone Treatment.

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