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Clinical trials: Parents’ experiences
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Clinical trials in young people :
Why do we have clinical trials in children and young people?
Different types of trials
Information parents receive when invited to enrol their child
Making the decision about enrolling your child :
Making the decision about enrolling your child: parental consent
Involving children in decisions: child assent
Reasons for wanting your child to take part: child’s health
Reasons for wanting your child to take part: helping medical science and others
Deciding not to enrol your child and when your child may not be eligible
Being in a trial :
Understanding allocation (randomisation) to a treatment comparison group
What is involved in a trial: Appointments and monitoring
What is involved in a trial: time commitment, costs and payment
Side effects
When the trial ends: feelings, future care and personal feedback
When the trial ends: feedback of trial results
Withdrawing your child from a trial
Other issues :
Parents messages to health professionals
Messages to Parents
Views on future trials
Other types of medical research
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Lucinda - Interview 33
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Lucinda explains that although the drugs are already used to treat migraine in adults, this is the first time the drug has been tested in children.
Lucinda’s son was diagnosed with migraine at the age of 6 and in 2010 she was invited to enroll her son in a double blind randomised placebo controlled trial on the treatment of migraine in children.
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