Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Clinical trials in young people :
Why do we have clinical trials in children and young people?
Different types of trials
Information parents receive when invited to enrol their child

Making the decision about enrolling your child :
Making the decision about enrolling your child: parental consent
Involving children in decisions: child assent
Reasons for wanting your child to take part: child’s health
Reasons for wanting your child to take part: helping medical science and others
Deciding not to enrol your child and when your child may not be eligible

Being in a trial :
Understanding allocation (randomisation) to a treatment comparison group
What is involved in a trial: Appointments and monitoring
What is involved in a trial: time commitment, costs and payment
Side effects
When the trial ends: feelings, future care and personal feedback
When the trial ends: feedback of trial results
Withdrawing your child from a trial

Other issues :
Parents messages to health professionals
Messages to Parents
Views on future trials
Other types of medical research

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Clinical trials: Parents’ experiences

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Soon after Emily was diagnosed, Ann was invited to enrol her daughter in a randomised trial on improving the treatment of Grave’s disease. Ann discussed it with Emily and they agreed to take part.

Medical research >> Clinical trials: Parents’ experiences >> Long term health conditions >> Ann - Interview 57 >> Ann was keen to help other parents and their children who may be diagnosed with Grave’s disease. She also hoped that taking part would improve her und

Soon after Emily was diagnosed, Ann was invited to enrol her daughter in a randomised trial on improving the treatment of Grave’s disease. Ann discussed it with Emily and they agreed to take part.

Medical research >> Clinical trials: Parents’ experiences >> Long term health conditions >> Ann - Interview 57 >> Ann described randomisation as ‘pot luck’ and ‘trial and error’.

Soon after Emily was diagnosed, Ann was invited to enrol her daughter in a randomised trial on improving the treatment of Grave’s disease. Ann discussed it with Emily and they agreed to take part.

Medical research >> Clinical trials: Parents’ experiences >> Long term health conditions >> Ann - Interview 57 >> Ann takes her daughter to the hospital every two weeks for tests, but this may change to once a month soon. She is pleased that they are keeping a clo

Soon after Emily was diagnosed, Ann was invited to enrol her daughter in a randomised trial on improving the treatment of Grave’s disease. Ann discussed it with Emily and they agreed to take part.

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