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Clinical trials: Parents’ experiences
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Clinical trials in young people :
Why do we have clinical trials in children and young people?
Different types of trials
Information parents receive when invited to enrol their child
Making the decision about enrolling your child :
Making the decision about enrolling your child: parental consent
Involving children in decisions: child assent
Reasons for wanting your child to take part: child’s health
Reasons for wanting your child to take part: helping medical science and others
Deciding not to enrol your child and when your child may not be eligible
Being in a trial :
Understanding allocation (randomisation) to a treatment comparison group
What is involved in a trial: Appointments and monitoring
What is involved in a trial: time commitment, costs and payment
Side effects
When the trial ends: feelings, future care and personal feedback
When the trial ends: feedback of trial results
Withdrawing your child from a trial
Other issues :
Parents messages to health professionals
Messages to Parents
Views on future trials
Other types of medical research
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Clinical trials: Parents’ experiences
People's stories
Growth hormone trials
Alison - Interview 14
:
Alison talks about her experiences of three different clinical trials since the birth of her son. Two whilst in the neonatal unit of which one ...
Lisa - Interview 17
:
Callum was 2lb 12oz at birth and at the age of four years was small compared to his peers. Since being on growth hormones Callum ...
Charmaine - Interview 19
:
Charmaine consented for her youngest child, Courtney to receive Growth Hormone Treatment as part of a clinical trial. This was not an easy decision at ...
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