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Clinical trials: Parents’ experiences
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Clinical trials in young people :
Why do we have clinical trials in children and young people?
Different types of trials
Information parents receive when invited to enrol their child
Making the decision about enrolling your child :
Making the decision about enrolling your child: parental consent
Involving children in decisions: child assent
Reasons for wanting your child to take part: child’s health
Reasons for wanting your child to take part: helping medical science and others
Deciding not to enrol your child and when your child may not be eligible
Being in a trial :
Understanding allocation (randomisation) to a treatment comparison group
What is involved in a trial: Appointments and monitoring
What is involved in a trial: time commitment, costs and payment
Side effects
When the trial ends: feelings, future care and personal feedback
When the trial ends: feedback of trial results
Withdrawing your child from a trial
Other issues :
Parents messages to health professionals
Messages to Parents
Views on future trials
Other types of medical research
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Clinical trials: Parents’ experiences
People's stories
Long term health conditions
Emma - Interview 10
:
Emma enrolled her son in a clinical trial for the Ketogenic Diet when he was aged seven years. She says it is the best thing ...
Alison - Interview 25
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Alison became involved with clinical trials when her son was six years old, he is now 22. Alison talks about consenting on behalf of her ...
Jane - Interview 28
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Jane and her daughter both took part in a trial to test the delivery of information and support given to young people with a diagnosis ...
Kathryn - Interview 29
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Kathryn gave consent to her daughter to take part in a clinical trial when attending a routine clinic visit. The trial was a randomised trial ...
Laura - Interview 31
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Laura’s responded to a recruitment poster while waiting for a routine scan at her local hospital when pregnant. Researchers were looking for volunteer mums ...
Jo - Interview 32
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Jo’s son experiences severe migraines. In 2009 she was invited to enroll her son in a randomised placebo controlled trial for the treatment of ...
Lucinda - Interview 33
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Lucinda’s son was diagnosed with migraine at the age of 6 and in 2010 she was invited to enroll her son in a double ...
Paul - Interview 38
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Paul’s son was diagnosed with diabetes two years ago when he was aged 6 years. Soon after his son’s diagnosis Paul was invited ...
Gary - Interview 39
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Gary and his son agreed to take part in a randomised trial on the management of diabetes in young people. Gary and his son were ...
Sandra - Interview 41
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One year after her daughter’s diagnosis, Sandra was invited to enrol her daughter in a ten year trial to follow her daughter’s progress. ...
Nutan - Interview 45
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Nutan was invited to enrol her daughter in a trial on the management of diabetes among children and young people. The trial was fairly straightforward ...
Ann - Interview 57
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Soon after Emily was diagnosed, Ann was invited to enrol her daughter in a randomised trial on improving the treatment of Grave’s disease. Ann ...
Steve - Interview 03
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Steve aged 49 years is married, White British and a full time carer for his wife and son who both have Osteogenesis Imperfecta. Steve has ...
John - Interview 07
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John’s daughter Chloe was recently admitted to hospital due to a spell of poor health. During this time he was invited to enroll Chloe ...
Vicky - Interview 36
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Vicky gave consent for her daughter to take part in a clinical trial when attending a routine clinic visit. The trial was a randomised trial ...
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