Did they talk about all the randomisation and that and things like that?
Oh, yes, yes, yes, they did.
And what did you, what do you understand about that?
It was just basically that there’s different ways to treat it, and there’s no right way to treat. So if they can treat different people in different ways and then they can find out which is the happy medium. And, fingers crossed, they can use the one treatment for everybody. And hopefully they’ll find the right solution to it.
Did they explain that she might be in one group or another group and how that would work?
How did they explain that to you?
They just said that there was a couple of ways of treating it and they just randomly pick one. And, fingers crossed, it’ll work for Emily. And if it doesn’t, they’ll try something else.
And did you mind that, being randomised in to --?
No, no, because at the end of the day whatever treatment they try, it’s all trial and error, with any illness. You can’t say, “Right, this treatment will suit you and that treatment will suit that person.” It doesn’t always work that way. It’s all hit and miss.
What do those terms mean to you?What does randomisation mean to you, if you had to explain it, to another parent?
Pot luck. You just, you just, you just go, just go with the flow. At the end of the day if they randomly pick a treatment for you. All right, it might not be the best treatment for you. And they can change it. But it’s best if it gets, everything is trial and error.