Alison - Interview 25  

Alison - Interview 25

Age at Interview: 49
Sex: Female
Background: Alison, aged 49 years, put her career on hold to care for her son who was diagnosed with Cystic Fibrosis soon after birth; he is now 22. Alison now works part time in a School and lives with her husband and second son who is a carrier of CF.

Brief outline:Alison became involved with clinical trials when her son was six years old, he is now 22. Alison talks about consenting on behalf of her son to supporting her son in making his own decisions and the reasons for taking part in clinical trials.

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Having a good relationship with her son has helped Alison in supporting him make an informed decision to take part in a clinical trial.

 



 When would you stop, would there come a time when you would stop him taking part?

 
No there wouldn’t because I wouldn’t be able to stop him taking part. I could have conversations with him but we’ve built up enough of a relationship with each other and enough knowledge about each other that I wouldn’t say you cannot, you know, I forbid you to do this. Because he, he could just turn around and say well, you know, quite rightly you don’t have the right to and I wouldn’t. I would have to approach it by taking the tack of talking him through on an informed basis, are you sure because of that and then if he wanted to do it then I would have to say, you know, of course I’ll always be there for you to do it. I suppose I’d probably say I have my doubts about it but if you’re sure to do it then, you know, I’ll support you.
 
Have an open communication?
 
Yes I mean I don’t, I don’t see and I wouldn’t want to have that kind of relationship where I say, you know, you’re not doing it, yes I don’t see how I could possibly do that anyway so yes.
 

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