I suppose something that I kind of would want to hit upon, kind of we talked a little bit about financial implications. Obviously you’re not, paid to do a trial and it’s something you do voluntarily. And that’s strange. And I wonder if you were paid to do something, whether that would change your attitude towards doing it, and whether parents should be paid. You know, is it right to be paid to take part?
There is a debate there?
Yes, you know, is that right? And do your motives change? And actually would you get more people signing up? Or would you actually get less, because it’s then perceived to be more riskier if you’re being paid to do something?
That’s the problem.
So, yes, I just think that’s an interesting question. And if we’d been paid to do these things, how, how would it have affected our decision? I think for us it would have been wrong actually. And I think it needs to be something for the trials that we took part in to be done voluntarily. I think it would have been very wrong for money, because the motive becomes wrong and it changes. And also you perceive it to be something that’s risky because you’re being paid to do it. And I think it would be wrong. But I think it’s an interesting question to ask. You know, do you pay somebody for giving their time for something that actually could be hugely important, you know.
What about the young people themselves? Do you think it’s important to pay them?
I almost wonder, yes, I don’t know. Maybe. Yes, I mean maybe for an 18-year-old it is appropriate to be paid to do something. You know, maybe that is hugely important. And it would be interesting to hear what young people have to say about that actually. Because my feeling is that it’s very different and that’s a very different picture. Perhaps it is right, you know, especially if somebody is, has ongoing treatment and it’s something that they’re, you know, commit themselves to doing for x number of years, you know.
