Subject index - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

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Finding out about a trial :
What are clinical trials and why do we need them?
Different types of clinical trial
Being asked about taking part in a trial
Information and questions
Difficulties finding a trial to join

Deciding whether to take part – risk and benefits :
Reasons for wanting to take part – personal benefit
Reasons for wanting to take part – helping medical science
Deciding not to take part
Thinking about withdrawing from a trial
Why people may not be eligible to join a trial

Being in a trial :
Feelings about being allocated (randomised) to a treatment group
Feelings about being in a placebo-controlled trial
Blinded trials
Non-randomised trial designs and other studies
Side effects and queries
Time commitment, money and other practical issues
Appointments, monitoring, questionnaires
Communication between different health professionals

At the end of a trial :
Feelings when a trial ends
Feedback of trial results

Other issues :
Attitudes to taking part in another trial
Funding and publishing trials
Public awareness and involvement
Under-researched topics/priorities for other research
Messages to other people
Messages to professionals

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Clinical Trials

Subject index

David volunteered for a placebo-controlled trial of a new treatment derived from mouse DNA to improve asthma symptoms. He later discovered he was in the group taking a lower dose of the treatment, but he would not have minded being in the placebo group.

Medical research >> Clinical Trials >> Cancer - Non-randomised studies >> Anthea - Interview 39 >> The drug company running the trials paid petrol money for people driving to the hospital, but Anthea would have taken part anyway.

Anthea was diagnosed with malignant melanoma in 2000. She has been in a randomised trial of treatment with interferon and is now in a phase 1 trial of a combination of drugs which attack the DNA of cancer cells.

Medical research >> Clinical Trials >> Long term conditions >> David - Interview 34 >> The offer of a generous expenses package was attractive to David, though looking back he feels it was fair compensation for his time and effort.

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