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• Medical research >> Clinical Trials >> Not taking part in a trial >> Lesley - Interview 44 >> It was hard being asked about a trial when she was feeling shocked and worried. But she understands that timing is important when treatment decisions

Lesley slipped and fractured her heel. She was invited to take part in a trial comparing surgery with letting the bones heal naturally. She decided not to take part because she wanted the consultant to make a decision about treatment.

• Medical research >> Clinical Trials >> Not taking part in a trial >> Elizabeth - Interview 27 >> If someone had mentioned the trial earlier on it would have been less of a shock when she was feeling so vulnerable. The idea needs to be introduced s

Elizabeth was invited to join a trial of chemotherapy for ovarian cancer, but decided not to take part as she knew which treatment she would prefer and did not want to be randomised to another group. She felt the consultant was cross about her decision.

• Medical research >> Clinical Trials >> Screening, prevention other medical interventions >> Sue - Interview 01 >> Sue took part in a trial of decision aids because she wanted more information to help her understand what happened in her first labour and why she nee

Sue’s first baby was born by emergency caesarean. In her next pregnancy she took part in a trial looking at different types of information and decision aids about birth choices for women who had already had one caesarean. She was pleased to be involved.

• Medical research >> Clinical Trials >> Screening, prevention other medical interventions >> Joanna - Interview 04 >> Joanna thought the questionnaire about feelings was badly designed. She tried to point out that her feelings were related to her husband’s illness, no

Joanna took part in a six-year trial of screening for ovarian cancer. She feels some aspects of the trial were not well managed. Her husband, who had leukaemia and died recently, also took part in trials.

• Medical research >> Clinical Trials >> Mental health trials >> Fenella - Interview 20 >> Fenella explains the trial treatment for borderline personality disorder and why questionnaires were important to check the effect on her mental state

Fenella took part in a randomised trial of partial hospitalisation compared to standard community treatment for borderline personality disorder. Results showed the group she was in (partial hospitalisation) had better outcomes.

• Medical research >> Clinical Trials >> Long term conditions >> Angela - Interview 23 >> Angela was asked questions about mobility and activities of daily living, but also about her emotions and relationships.

Angela was diagnosed with Parkinson’s disease after taking part in a trial on nerve conduction. She has since been in a randomised trial of different drugs for Parkinson’s and would happily take part in another trial, despite having had side effects.(Angela is also on our Parkinson’s disease site, Interview 10).

• Medical research >> Clinical Trials >> Cancer - Non-randomised studies >> Pam - Interview 21 >> Pam asks doctors to understand how difficult it is to take in all the information, to be patient when people ask questions, and to spell out all the a

Pam has breast cancer which spread to her bones and liver. She joined an open-label expanded access study of lapatinib and capecitabine, before lapatinib was licensed for general use. She left the study after lapatinib stopped working. (Wife of Tony, Interview 36)

• Medical research >> Clinical Trials >> Cancer drugs and radiotherapy - randomised trials >> Rose - Interview 17 >> Patients may look calm and unemotional on the surface, but they may not be feeling that way underneath.

Rose took part in a trial for people with inoperable lung cancer, comparing radiotherapy alone with radiotherapy plus chemotherapy. She had just radiotherapy. The trial was stopped early because so few people agreed to take part.