Communication between different health professionals

Clip
Medical research >> Clinical Trials >> Not taking part in a trial >> Gill - Interview 10 >> Doctors may want to protect their patients after breaking bad news, but they should not be afraid to ask them about research. Patients may want a chan

Gill discovered she had breast cancer in 2007. She would have liked to take part in a trial to help other women with breast cancer in future, but none was available.

Medical research >> Clinical Trials >> Not taking part in a trial >> Charles - Interview 29 >> Now Charles is on a research unit database he hears about other relevant trials, but many people must get missed and GPs are probably selective in wha

Charles volunteered for two trials, but ended up unable to take part in either of them. The first time he did not meet the eligibility criteria. The second time was because of an administrative mix-up about his age, and he feels it was not well handled.

Medical research >> Clinical Trials >> Long term conditions >> Phil - Interview 11 >> Phil joined a trial of medication for high blood pressure mainly to see staff who specialised in his condition and had more time than his GP. Helping

Phil took part in a trial of medication for high blood pressure and cholesterol. He had some side effects early on, so the medication was changed. He has been very happy with the care provided as part of the trial.

Medical research >> Clinical Trials >> Long term conditions >> Danny - Interview 26 >> Danny’s husband learnt he had diabetes when he was being monitored during a previous trial. They both volunteered for another trial because it helps t

Danny joined a trial of high blood pressure medication, but stopped because of side effects. She has concerns about the way some staff communicated with her and a lack of rapport and respect for her as a volunteer interested in her own health.

Medical research >> Clinical Trials >> Screening, prevention other medical interventions >> Amanda - Interview 22 >> Amanda was surprised to find she was eligible for a diabetes prevention trial. She withdrew because she was annoyed that staff told her GP she was at

Amanda has taken part in a trial of pro-biotic yoghurt for irritable bowel syndrome, and withdrew from a trial about early interventions to prevent diabetes. She is setting up a website for the public to design their own trials.

Medical research >> Clinical Trials >> Not taking part in a trial >> Charles - Interview 29 >> Charles volunteered for a trial involving prostate cancer testing. He was pleased to discover he was at low risk, as he thinks there is a family histo

Medical research >> Clinical Trials >> Cancer drugs and radiotherapy - randomised trials >> Wendy - Interview 02 >> It might have been useful for her GP and the Macmillan nurses to know more about possible side effects, but trial staff told her to come back to them

Wendy was invited to take part in a chemotherapy trial after being diagnosed with bowel cancer. She decided to take part, and was allocated to the experimental group. She experienced quite severe side effects but continued to the end of the treatment.

Medical research >> Clinical Trials >> Cancer - Non-randomised studies >> Julian - Interview 33 >> Julian opted to get copies of any letters to his GP, and asks for updates on his own test results. He’d like more opportunities to meet other patients

Julian has prostate cancer. He is in a Phase 1 trial of a drug (a PARP inhibitor) which may stop cancer cells regrowing in people like him who have the BRCA2 genetic mutation. This mutation increases the risk of prostate and other cancers.

Medical research >> Clinical Trials >> Long term conditions >> Phil - Interview 11 >> Phil suggests it might be a good idea to have more formal liaison between GPs and trial staff so the GPs can learn from it and improve care.

Medical research >> Clinical Trials >> Long term conditions >> Sarah - Interview 38 >> The trial staff said they’d make sure Sarah’s GP was told that she had osteoporosis. Later she discovered he had no record of it, so she feels she mis

Sarah volunteered for a placebo-controlled trial of a drug intended to help women at risk of osteoporosis. It involved daily injections and eventually she dropped out of the trial. (You can see Sarah talking more about her experiences on the healthtalkonline site osteoporosis, Interview 27).

Medical research >> Clinical Trials >> Cancer - Non-randomised studies >> Julian - Interview 33 >> He has sometimes picked up mistakes in the letters sent to his GP from the trial. This is a good reason for patients to see copies of the letters.

Medical research >> Clinical Trials >> Not taking part in a trial >> Marie - Interview 25 >> Marie’s GP spent time discussing her concerns about the trial and her consultant contacted the trial on her behalf to say she was not happy to take pa

Marie was diagnosed with chronic lymphocytic leukaemia in 1992. She was recently invited to take part in a clinical trial of a new monoclonal antibody. At first she thought she would take part but after reading all the details decided against it.

Medical research >> Clinical Trials >> Screening, prevention other medical interventions >> Jenny - Interview 40 >> Filling in the questionnaire about her symptoms prompted Jenny to realise that the treatment wasn’t working, so she went back to her GP.

Jenny is in a trial of different ways of treating heavy periods at her GP surgery. The trial compares standard treatment with a new kind of coil or intrauterine device which releases a hormone in the womb.

Medical research >> Clinical Trials >> Cancer drugs and radiotherapy - randomised trials >> Celia - Interview 12 >> Her GP asked her permission to send monitoring information about her to the trial staff. She has no more direct contact with the trial, but hopes she’

Celia took part in a randomised controlled trial comparing different periods of radiotherapy for lymphoma. She was would have preferred the shorter course; she was allocated to the longer course but took part anyway.

Medical research >> Clinical Trials >> Long term conditions >> Elvan - Interview 15 >> Elvan missed the trial when it ended. He liked the research team and was disappointed they hadn’t been able to improve his symptoms yet.

Elvan took part in a trial of medication for hypertension. His blood pressure did not improve much, but he felt well cared for and is glad to have taken part. He has since joined another trial in the same unit.

Medical research >> Clinical Trials >> Long term conditions >> Phil - Interview 11 >> Phil felt a bid sad at the end of the trial – he missed seeing the team, and the feeling that he was in expert hands.

Medical research >> Clinical Trials >> Long term conditions >> Phil - Interview 11 >> Phil was happy with his first experience of a trial, and has recently volunteered for a similar trial. He values the expert supervision.

Medical research >> Clinical Trials >> Not taking part in a trial >> Gill - Interview 10 >> Doctors may want to protect their patients after breaking bad news, but they should not be afraid to ask them about research. Patients may want a chan

Gill discovered she had breast cancer in 2007. She would have liked to take part in a trial to help other women with breast cancer in future, but none was available.

Communication between different health professionals

Mail to a friend