The UK Clinical Research Collaboration (UKCRC)
UKCRC booklet
NHS Choices
Testing Treatments: better research for better healthcare
The Diabetes Research Network
The Population Council
The University of Pittsburgh Medical Center
James Lind Library

The UK Clinical Research Collaboration (UKCRC)

www.ukcrc.org

Has produced an easy-to-read information booklet for patients called ‘Understanding Clinical Trials’.



UKCRC booklet

www.cancerbackup.org.uk/Treatments/Trials/Understandingtrials

In turn, the UKCRC booklet adapted material from the charity Cancerbackup (now part of Macmillan Cancer Support). For this specific information on cancer trials. 



NHS Choices

 Has a section on medical research, including some patient experience.



Testing Treatments: better research for better healthcare

www.testingtreatments.org

The book ‘Testing Treatments: better research for better healthcare’ is also available in full for free to download at James Lind Library.



The Diabetes Research Network

www.diabetesresearchnetworking.org/ 

Has produced video and other resources explaining trials in diabetes with contributions from patients.



The Population Council

www.popcouncil.org/media/saclips/videolink.html

An international, nonprofit, nongovernmental organisation, seeks to improve the well-being and reproductive health of current and future generations around the world and to help achieve a humane, equitable, and sustainable balance between people and resources. It has made a very clear video explaining trials in the context of HIV prevention in Africa.



The University of Pittsburgh Medical Center

University of Pittsburgh Medical Center website

The University of Pittsburgh Medical Center in the Unites States also offers a website combining information with some patient experiences.



James Lind Library

James Lind Library

The James Lind Library contains a range of resources explaining the principles and history of fair tests of medical treatments. The book 'Testing Treatments: better research for better healthcare' is also available in full for free to download from a link on the James Lind Library homepage.

Back to languages - we have a possible enquiry from our sister project in Japan about setting up a healthtalkonline project there about clinical trials. Just the germ of an idea at present, but I'll let you know if anything comes of it.



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