Sarah - Interview 38  

Sarah - Interview 38

Age at Interview: 61
Sex: Female
Background: Sarah is a retired hospital ward clerk. She is married, with 2 grown-up children. Ethnic background/nationality: White Welsh/English.

Brief outline:Sarah volunteered for a placebo-controlled trial of a drug intended to help women at risk of osteoporosis. It involved daily injections and eventually she dropped out of the trial. (You can see Sarah talking more about her experiences on the healthtalkonline site osteoporosis, Interview 27).

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The trial staff said they’d make sure Sarah’s GP was told that she had osteoporosis. Later she discovered he had no record of it, so she feels she missed years of treatment.

 



I had to give it up, so I had another DEXA scan which showed I obviously still had got osteoporosis. It’s not something that’s going to go away. And I was told by the lady doing the trial that if they found I had osteoporosis in the first place, they’d contact my GP so that I could be put on something to help me. But I went to my GP after an accident, and had heard nothing - this was a few years later. I hadn’t had any medication in those years, and I think perhaps I could have been on something to help me and I wouldn’t have broken two of my vertebrae.
 
Okay, what, did you ever think about going to your GP and saying, “Do you know, and should I be taking something?”
 
No, I didn’t realise. What’s really so stupid, I didn’t think that my GP would let me, just let me go without anything. I thought they’d call me, because he does with everything else. And so when I did ask, he said, “No we haven’t heard a thing about this, nothing.”
 
So you’d just assumed there was nothing they could do for you?
 
Yes [laughs] I must be living in the last century.
 
And what about health professionals running trials? What would you say to them from your experiences, ways they could make it better or easier or ?
 
It would help if we do get a run-down afterwards to tell us, just so that we know that we’ve been of some use and importance, and it’s helped you, in layman’s terms, because we don’t all understand what x’s and y’s and equals means. Should do from algebra lessons, but it doesn’t mean a lot. And if you do find that our GP should know, please inform the GP, make sure they know, because it could take a few years to pick this up, like it did with me. And I feel I’ve missed out on years of treatment, whereas I could have been on something to strengthen my bones for all those years, six years. Yes. But you’re doing a good job though [laughs].
 
So better communication with your normal--
 
Definitely better communication.
 
--GP
 
Yes. I don’t think my GP lost the letters. I really don’t. I just do not think they went there in the first place [laughs].

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