Marie - Interview 25  

Marie - Interview 25

Age at Interview: 69
Sex: Female
Background: Marie is a housewife, married, with two grown-up children.

Brief outline:Marie was diagnosed with chronic lymphocytic leukaemia in 1992. She was recently invited to take part in a clinical trial of a new monoclonal antibody. At first she thought she would take part but after reading all the details decided against it.

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She had heard bad things about commercial trials. She thought a trial in an NHS hospital would be run by the NHS and was worried to discover it was run by a drug company.

 



The only information that I heard about clinical trials was bad information. And the few, about a year ago when all those boys had clinical trials* and they all went wrong and I know that they’re still fighting for compensation, trying to prove it with the drug companies, and I don’t agree anybody would ever be able to fight drug companies. They have too much money behind them. I knew that, but had I have known it was a foreign drug company and not my NHS research team, I wouldn’t have agreed. But I just thought that it was because I knew nothing about trials and it was put to me from an NHS hospital that it would be NHS. I don’t know why I thought that because I was totally ignorant about trials but I thought it would be done through my local hospital research.
 
*FOOTNOTE: Marie is referring to a Phase 1 trial at a commercial research unit based at Northwick Park Hospital in 2006 when 6 healthy volunteers became extremely ill. A copy of the Inquiry Report of this incident can be downloaded from the Department of Health website:
 
 

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