Well, yeah, I’ve, I found the professionals really helpful, supportive, as I say, speak plain English, are prepared to put up with one’s individual mores and, and idiosyncrasies, indulge people – well, they’ve indulged me in taking, I’ve been supported in everything I’ve done, whether the team may have thought it clinically appropriate or not. And they’ve always been there, and if I need help or I need to change meds or whatever it is, then they’ve been easy to get in touch with and very responsive and positive, which doesn’t mean to say that they won’t tell you about negative things if you ask. But they’re not bombasting, bombarding you with awful things at the beginning. There’s very much a feeling that you can come to things at your own pace, mm.
And is there any specific message about how to involve people in trials, from the way that you’ve been treated?
Well, just by, I can’t - one can only do what one can do, and that is to try and influence one’s own social network.
I was thinking about the professionals and how they interacted with you over the trial.
They were, well, they were great, you know. I mean, I felt informed. I may have forgotten since [laughs]. Again I felt supported. I was given lots of information in a very positive way, at a time when… I could have been really emotional - I don’t know, I suppose I was - but that I was relieved and pleased that I was able to make a contribution. Yeah, that’s right. Mm.
Yes, because, yes that’s right, pleased to be able to do something positive, turn it round out of something pretty negative.
