Well, I felt that the way that they did it with me was quite acceptable. Obviously they need to put things in language people understand, and make sure that all the information is given to the patient both orally and in written form for them to take away, that they’re given them time to think about it, and that, you know, the truth is told to them at all times.
And from your perspective on the consumer panel, do you have views about how research and trials are organised more generally?
…Well, from other people’s experiences I know that the information given isn’t always good enough. Some people have found that, that they didn’t, they weren’t told enough, and again that it wasn’t written in language that people could understand. There was, there’s quite a lot of criticism in the group about how the sort of language used to explain the trial to the patient.
